Jumpstarting culturally-informed advance care planning for Alaska Native people in primary care
Official title: Jumpstarting Culturally-informed Advance Care Planning with ANAI People in Primary Care
Funded at Southcentral Foundation · NIH-11365784 · Data updated 2026-11-12
A patient-focused project aims to help Alaska Native adults start and complete advance care planning with culturally tailored support in primary care.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Southcentral Foundation NIH-funded |
| Lab location | 1 site (Anchorage, United States) |
| Project start | August 22, 2022 |
| Project end | May 31, 2027 |
| Funding year | 2026 |
| Award (this year) | $466,849 |
| NIH project number | 5R01NR020491-05 |
| Project ID | NIH-11365784 on NIH RePORTER |
Who could benefit from this research
✓Could help
Alaska Native adults 21+ with chronic illnesses who are receiving care in primary care and are open to discussing advance care planning.
✕Less likely to help
Patients unlikely to benefit include those not interested in discussing end-of-life preferences or who do not have a chronic condition.
What this research studies
This project targets Alaska Native adults 21 and older who have serious chronic illnesses and are receiving care in primary settings. It will involve engaging patients and communities to create advance care plans that reflect Alaska Native values, beliefs, and preferences. The study will use community-informed approaches and primary-care workflows to help patients articulate goals of care and prepare ADs, aiming to improve alignment between patients’ wishes and the care they receive.
Why it matters
Potential benefit: If successful, patients and families may experience care that aligns more closely with their values and reduces unwanted invasive treatments at end of life.
How similar studies have gone: Previous work suggests tailored ACP approaches can improve adoption of advance directives in specific populations, though ANAIs have lower baseline AD rates and may benefit from culturally tailored methods.
Where this research is happening
-
Southcentral Foundation
Anchorage, United States Active
Researchers
- Principal investigator: Shaw, Jennifer Lyn — Southcentral Foundation
- Study coordinator: Shaw, Jennifer Lyn
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.