Investigating a model for inherited blindness using nonhuman primates

Nonhuman Primate Model of Inherited Photoreceptor Degeneration

NIH-funded research Oregon Health & Science University · NIH-11072093

This study is looking at a genetic eye condition called Bardet-Biedl syndrome, which can cause blindness, and it uses a special family of monkeys that have similar eye problems to help test a new gene therapy that could one day help people with this condition.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionOregon Health & Science University NIH-funded
Lab location1 site (Portland, United States)
Project IDNIH-11072093 on NIH RePORTER

What this research studies

This research focuses on understanding inherited retinal degeneration, specifically Bardet-Biedl syndrome, which leads to blindness. By using a unique family of rhesus monkeys that exhibit similar retinal degeneration as humans, researchers aim to develop and test a novel gene therapy. The study involves careful observation and analysis of the monkeys' retinal structure and function, which closely resembles that of humans, to evaluate the effectiveness of potential treatments before they are applied to human patients.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals with inherited retinal degenerations, particularly those with Bardet-Biedl syndrome or similar conditions.

Not a fit: Patients with retinal degeneration caused by non-genetic factors or those without inherited conditions may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to effective gene therapies that restore vision in patients suffering from inherited retinal diseases.

How similar studies have performed: Previous research has shown promise in using animal models for testing gene therapies, indicating a potential for success in this novel approach.

Where this research is happening

Portland, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-09 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.