Improving quality of life for young people with blood disorders
Official title: Collaborative Care to Improve Resilience and Quality of Life among Youth with Non-malignant Blood Disorders
Funded at Dana-Farber Cancer Inst · NIH-10863364 · Data updated 2026-11-12
This study is all about supporting teenagers and young adults with Sickle Cell Disease by creating a coaching program that helps them cope with their challenges and improve their overall well-being.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Dana-Farber Cancer Inst NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project start | September 1, 2024 |
| Project end | August 31, 2029 |
| Funding year | 2024 |
| Award (this year) | $127,302 |
| NIH project number | 1K24HL173664-01 |
| Project ID | NIH-10863364 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are adolescents and young adults aged 0-21 who are living with non-malignant blood disorders, particularly Sickle Cell Disease.
✕Less likely to help
Patients with malignant blood disorders or those outside the age range of 0-21 may not benefit from this research.
What this research studies
This research focuses on helping adolescents and young adults with blood disorders, particularly those with Sickle Cell Disease, who often face multiple chronic symptoms and emotional challenges. The project aims to develop interventions that address the unique stressors these young patients experience, which can worsen their physical and mental health. By implementing a resilience coaching program, the research seeks to alleviate suffering and enhance the overall quality of life for these individuals. The approach includes mentoring future researchers to ensure ongoing support for this patient population.
Why it matters
Potential benefit: If successful, this research could significantly improve the emotional and physical well-being of young patients with blood disorders.
How similar studies have gone: Previous research has shown success in similar interventions aimed at improving resilience and quality of life in young cancer patients.
Where this research is happening
-
Dana-Farber Cancer Inst
Boston, United States Active
Researchers
- Principal investigator: Rosenberg, Abby R — Dana-Farber Cancer Inst
- Study coordinator: Rosenberg, Abby R
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.