Improving patient involvement in understanding low grade brain tumors
OPTimIzing engageMent in discovery of molecular evolution of low grade glioma (OPTIMUM)
This study is all about helping young adults with low grade gliomas, a type of brain tumor, by creating a supportive community where they can share their experiences and medical information with researchers to better understand how these tumors change over time.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project ID | NIH-10927334 on NIH RePORTER |
What this research studies
This research focuses on low grade gliomas, a type of brain tumor that primarily affects young adults. It aims to enhance patient engagement in genomic studies that track the evolution of these tumors from diagnosis to recurrence. By building a community of 700 patients who have had surgery for their tumors, the project will utilize both in-person and online methods to facilitate communication and data sharing between patients and researchers. The study will leverage existing tools to ensure patients can easily access and share their medical records, thereby improving their participation and satisfaction in the research process.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with low grade gliomas who have undergone surgical resection and are willing to participate in genomic studies.
Not a fit: Patients with other types of brain tumors or those who have not had surgery for low grade gliomas may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better understanding and management of low grade gliomas, ultimately improving outcomes for patients.
How similar studies have performed: Previous research has shown success in patient engagement strategies for genomic studies, indicating that this approach has potential for meaningful impact.
Where this research is happening
New Haven, United States
- Yale University — New Haven, United States (Active)
Researchers
- Principal investigator: Claus, Elizabeth B. — Yale University
- Study coordinator: Claus, Elizabeth B.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.