Improving end-of-life care for young cancer patients
End-of-life care quality for adolescents and young adults with cancer: Including the patient voice in quality assessment
['FUNDING_U01'] · DANA-FARBER CANCER INST · NIH-11045434
This study is all about finding out what young people with cancer and their families really want and need for better care at the end of life, so we can make sure their voices are heard and their preferences are respected.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | DANA-FARBER CANCER INST (nih funded) |
| Locations | 1 site (BOSTON, UNITED STATES) |
| Trial ID | NIH-11045434 on ClinicalTrials.gov |
What this research studies
This research focuses on understanding and improving the quality of end-of-life care for adolescents and young adults (AYAs) with cancer. It involves engaging AYAs, their families, and healthcare providers to identify what quality care means to them, particularly in terms of personal preferences and support needs. The study aims to develop and implement new measures that reflect the unique experiences and priorities of AYAs facing advanced cancer, ensuring their voices are included in the assessment of care quality.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents and young adults diagnosed with advanced cancer, particularly those from Black, Asian, and Hispanic backgrounds.
Not a fit: Patients who are not adolescents or young adults, or those with early-stage cancer, may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to enhanced end-of-life care that aligns more closely with the needs and preferences of young cancer patients.
How similar studies have performed: Previous research has shown success in developing patient-centered care models for older adults, but this approach for AYAs is relatively novel.
Where this research is happening
BOSTON, UNITED STATES
- DANA-FARBER CANCER INST — BOSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: MACK, JENNIFER W — DANA-FARBER CANCER INST
- Study coordinator: MACK, JENNIFER W
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Adolescent and young adult cancer patients, Adolescent and young adult cancer population, Adolescent and young adults with cancer, Advanced Cancer, advanced disease