Improving end-of-life care for children with cancer
Official title: The Pediatric Advanced Cancer Experience (PACE): Measuring Quality of End-of-Life Care for Children with Cancer
Funded at Yale University · NIH-11045093 · Data updated 2026-11-12
This study is all about making end-of-life care better for kids with advanced cancer by listening to what families need and want, and it will create a new questionnaire to help improve the care they receive.
Quick facts
| Grant type | Career grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project start | April 1, 2021 |
| Project end | March 31, 2026 |
| Funding year | 2025 |
| Award (this year) | $220,802 |
| NIH project number | 5K08CA259222-05 |
| Project ID | NIH-11045093 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include families of children diagnosed with advanced cancer who are facing end-of-life decisions.
✕Less likely to help
Patients who are not facing advanced cancer or those who are in remission may not receive benefit from this research.
What this research studies
This research focuses on enhancing the quality of end-of-life care for children suffering from advanced cancer. It aims to identify and prioritize quality measures that reflect the needs and perspectives of families, particularly parents of affected children. The study will utilize advanced techniques, including natural language processing of electronic health records, to analyze existing care processes and develop a new questionnaire called the Pediatric Advanced Cancer Experience (PACE) to evaluate care quality. By addressing the gaps in current standards, this research seeks to improve palliative care delivery for children facing terminal cancer.
Why it matters
Potential benefit: If successful, this research could lead to improved end-of-life care experiences for children with cancer and their families.
How similar studies have gone: While there has been significant research on end-of-life care for adults, this approach focusing specifically on children with cancer is relatively novel and untested.
Where this research is happening
-
Yale University
New Haven, United States Active
Researchers
- Principal investigator: Ananth, Prasanna J — Yale University
- Study coordinator: Ananth, Prasanna J
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.