Improving data sharing for epilepsy treatment and research
Pennsieve: Impactful Multimodal Data Sharing for Epilepsy Research
This study is working on a new platform to help people with medication-resistant epilepsy by sharing important health information, so researchers and doctors can work together better and find improved treatment options for you.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pennsylvania NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project ID | NIH-11012385 on NIH RePORTER |
What this research studies
This research aims to create a comprehensive data-sharing platform specifically for patients with medication-resistant epilepsy. By integrating various types of data, including advanced imaging and EEG results, the project seeks to enhance collaboration among researchers and clinicians. The goal is to develop a scalable Epilepsy Data Ecosystem that can adapt to the evolving needs of the epilepsy community, ultimately accelerating research and improving clinical care. Patients will benefit from the insights gained through this collaborative approach, which could lead to better treatment options.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals with medication-resistant epilepsy who may benefit from advanced treatment options.
Not a fit: Patients whose epilepsy is well-controlled with medication may not receive significant benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies and outcomes for patients with epilepsy.
How similar studies have performed: Previous efforts in data sharing and collaboration within epilepsy research have shown promise, indicating that this approach could be effective.
Where this research is happening
Philadelphia, United States
- University of Pennsylvania — Philadelphia, United States (Active)
Researchers
- Principal investigator: Wagenaar, Joost B — University of Pennsylvania
- Study coordinator: Wagenaar, Joost B
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.