Improving care for children and teens with inflammatory bowel disease
Official title: Feasibility of a care team-focused action plan to improve quality of care for children and adolescents with inflammatory bowel disease
Funded at Univ of North Carolina Chapel Hill · NIH-10724900 · Data updated 2026-11-12
This study is testing a helpful app called myIBDplan that shares important health information for kids and teens with inflammatory bowel disease (IBD) to make it easier for families and doctors to work together and make the best care decisions.
Quick facts
| Grant type | R03 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Univ of North Carolina Chapel Hill NIH-funded |
| Lab location | 1 site (Chapel Hill, United States) |
| Project start | September 1, 2023 |
| Project end | August 31, 2025 |
| Funding year | 2023 |
| Award (this year) | $155,500 |
| NIH project number | 1R03TR004311-01A1 |
| Project ID | NIH-10724900 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are children and adolescents aged 12 to 20 who are diagnosed with inflammatory bowel disease.
✕Less likely to help
Patients who do not have inflammatory bowel disease or are outside the age range of 12 to 20 may not benefit from this research.
What this research studies
This research focuses on enhancing the quality of care for children and adolescents with inflammatory bowel disease (IBD) by improving communication and coordination among healthcare providers. It utilizes a web-based and mobile app called myIBDplan, which shares patient-specific information from electronic health records (EHRs) to support families and care teams. The project aims to deliver tailored guidance on health needs, helping families make informed decisions about preventive and acute care. A pilot randomized controlled trial will assess the feasibility of this intervention with 60 participants.
Why it matters
Potential benefit: If successful, this research could lead to better coordinated care and improved health outcomes for young patients with inflammatory bowel disease.
How similar studies have gone: Previous research has shown promise in using technology to improve care coordination, making this approach both relevant and potentially impactful.
Where this research is happening
-
Univ of North Carolina Chapel Hill
Chapel Hill, United States Active
Researchers
- Principal investigator: Dejong, Neal — Univ of North Carolina Chapel Hill
- Study coordinator: Dejong, Neal
Related research
Other NIH-funded projects on the same topics.
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Mitochondrial Talks: How Energy Networks Shape Inflammatory Bowel Disease
Aimed at people with inflammatory bowel disease (IBD), this project explores how tiny cell powerhouses in the gut may go out of balance and contribute to IBD, with the goal of restoring energy and reducing disease symptoms.
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Mn in inflammatory bowel disease: how manganese and genes may shape gut inflammation
This grant studies how the mineral manganese and a specific gene variant may influence inflammatory bowel disease in people of different ages.
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AI-Enhanced Virtual Reality CBT to Reduce Anxiety for IBD Patients
A home-based VR and AI-powered cognitive behavioral therapy program is being tested to help people with inflammatory bowel disease feel less anxious and improve their quality of life.
-
Gasdermin-based epithelial function in inflammatory bowel disease
A funding opportunity that explores how gasdermin proteins affect the lining of the gut and may influence inflammatory bowel disease.
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Intestinal chondroitin sulfate glycosaminoglycans and their role in inflammatory bowel disease
A clinician-scientist mentoring program aims to advance understanding of how intestinal sugar molecules called chondroitin sulfate glycosaminoglycans influence inflammatory bowel disease and patient care.
-
Improving IBD outcomes through community awareness, referrals, and education
A U01 grant will support programs to raise awareness, improve referrals, and educate patients and clinicians about inflammatory bowel disease to improve diagnosis and care.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.