Improving care for children and teens with inflammatory bowel disease
Feasibility of a care team-focused action plan to improve quality of care for children and adolescents with inflammatory bowel disease
['FUNDING_R03'] · UNIV OF NORTH CAROLINA CHAPEL HILL · NIH-10724900
This study is testing a helpful app called myIBDplan that shares important health information for kids and teens with inflammatory bowel disease (IBD) to make it easier for families and doctors to work together and make the best care decisions.
Quick facts
| Phase | ['FUNDING_R03'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIV OF NORTH CAROLINA CHAPEL HILL (nih funded) |
| Locations | 1 site (CHAPEL HILL, UNITED STATES) |
| Trial ID | NIH-10724900 on ClinicalTrials.gov |
What this research studies
This research focuses on enhancing the quality of care for children and adolescents with inflammatory bowel disease (IBD) by improving communication and coordination among healthcare providers. It utilizes a web-based and mobile app called myIBDplan, which shares patient-specific information from electronic health records (EHRs) to support families and care teams. The project aims to deliver tailored guidance on health needs, helping families make informed decisions about preventive and acute care. A pilot randomized controlled trial will assess the feasibility of this intervention with 60 participants.
Who could benefit from this research
Good fit: Ideal candidates for this research are children and adolescents aged 12 to 20 who are diagnosed with inflammatory bowel disease.
Not a fit: Patients who do not have inflammatory bowel disease or are outside the age range of 12 to 20 may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to better coordinated care and improved health outcomes for young patients with inflammatory bowel disease.
How similar studies have performed: Previous research has shown promise in using technology to improve care coordination, making this approach both relevant and potentially impactful.
Where this research is happening
CHAPEL HILL, UNITED STATES
- UNIV OF NORTH CAROLINA CHAPEL HILL — CHAPEL HILL, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: DEJONG, NEAL — UNIV OF NORTH CAROLINA CHAPEL HILL
- Study coordinator: DEJONG, NEAL
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Chronic Disease