NIH-funded research NIH-funded research

Improving cancer registry operations and data collection methods

Official title: TASK ORDER 75N91021F00001 FOR SUPPORT SERVICES FOR DEVELOPING AND PROMOTING METHODS AND STANDARDS FOR CANCER REGISTRY OPERATIONS AND SURVEILLANCE DATA

Funded at North American Assn/central Cancer Reg · NIH-10469847 · Data updated 2026-11-12

This study is working to make cancer registries better at collecting and sharing important cancer information, which will help doctors and researchers understand and treat cancer more effectively, ultimately benefiting patients like you.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionNorth American Assn/central Cancer Reg
NIH-funded
Lab location1 site (Springfield, United States)
Project startJuly 1, 2021
Project endJune 30, 2026
Funding year2021
Award (this year)$1,150,000
NIH project number75N91021D00018-0-759102100001-1
Project IDNIH-10469847 on NIH RePORTER

Who could benefit from this research

Could help

Ideal candidates for benefiting from this research include cancer patients and survivors whose data will be collected and analyzed for better treatment strategies.

Less likely to help

Patients with non-malignant conditions or those not involved in cancer care may not receive direct benefits from this research.

What this research studies

This research aims to enhance the effectiveness of cancer registries by supporting the North American Association of Central Cancer Registries. It focuses on strengthening the capacity to collect and analyze cancer data, ensuring the quality and comparability of this data, and improving registry operations. By developing better methods and standards, the project seeks to make cancer surveillance more responsive to the needs of healthcare providers and researchers. Patients can benefit from improved data collection that leads to better understanding and treatment of cancer.

Why it matters

Potential benefit: If successful, this research could lead to more accurate cancer data, ultimately improving patient care and outcomes.

How similar studies have gone: Previous initiatives in cancer data collection and registry improvements have shown success in enhancing cancer surveillance and patient outcomes.

Where this research is happening

  • North American Assn/central Cancer Reg
    Springfield, United States
    Active

Researchers

  • Principal investigator: Kohler, Betsy — North American Assn/central Cancer Reg
  • Study coordinator: Kohler, Betsy

Related research

Other NIH-funded projects on the same topics.

  • A system to improve access to cancer surveillance data.

    This study is working on a new system that helps researchers easily access important cancer data, which could lead to better understanding and treatment options for patients like you.

    NIH research North American Assn/central Cancer Reg · Springfield, United States · NIH-11126509

  • Creating a national registry for childhood cancer data

    This study is creating a big database to gather and share important information about childhood cancers, like genetic details and treatment histories, so that kids with cancer and their families can get better treatment options and help track their health over time.

    NIH research North American Assn/central Cancer Reg · Springfield, United States · NIH-11126505

  • Improving cancer registry operations and data quality for better cancer surveillance.

    This study is working to make cancer registries better at collecting and sharing important cancer information, which can help improve care and outcomes for patients like you.

    NIH research North American Assn/central Cancer Reg · Springfield, United States · NIH-11126500

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.