Creating a national registry for childhood cancer data
Official title: NATIONAL CHILDHOOD CANCER REGISTRY (NCCR)
Funded at North American Assn/central Cancer Reg · NIH-11126505 · Data updated 2026-11-12
This study is creating a big database to gather and share important information about childhood cancers, like genetic details and treatment histories, so that kids with cancer and their families can get better treatment options and help track their health over time.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | North American Assn/central Cancer Reg NIH-funded |
| Lab location | 1 site (Springfield, United States) |
| Project start | July 1, 2022 |
| Project end | June 30, 2025 |
| Funding year | 2024 |
| Award (this year) | $1,176,918 |
| NIH project number | 75N91021D00018-P00006-759102200001-1 |
| Project ID | NIH-11126505 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include children diagnosed with cancer and their families who are willing to share their treatment and health data.
✕Less likely to help
Patients with non-malignant conditions or those who do not have a childhood cancer diagnosis may not benefit from this research.
What this research studies
The National Childhood Cancer Registry (NCCR) aims to build a comprehensive data infrastructure that connects and shares information about childhood cancers from various sources. This includes genomic data, treatment histories, and social factors that may affect health outcomes. By collecting and analyzing this data, the registry seeks to improve understanding of childhood cancers and their treatment outcomes over time. Patients and families can benefit from more informed treatment options and better tracking of cancer recurrence.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment strategies and outcomes for children with cancer.
How similar studies have gone: Previous initiatives in cancer registries have shown success in improving patient outcomes through better data sharing and analysis.
Where this research is happening
-
North American Assn/central Cancer Reg
Springfield, United States Active
Researchers
- Principal investigator: Kohler, Betsy — North American Assn/central Cancer Reg
- Study coordinator: Kohler, Betsy
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Community-led program to improve quality of life for Spanish-speaking families caring for a child with cancer
A family-centered, culturally responsive program aims to support Spanish-speaking caregivers of children with cancer and improve their quality of life.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.