Help for pulmonary rehab with peer support and patient stories
Improving Participation in Pulmonary Rehabilitation through Peer-Support and Storytelling
['FUNDING_OTHER'] · BAYSTATE MEDICAL CENTER, INC. · NIH-11418809
This project will try phone-based peer support and short personal-story videos to help adults with COPD start and stay in pulmonary rehabilitation.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | BAYSTATE MEDICAL CENTER, INC. (nih funded) |
| Locations | 1 site (SPRINGFIELD, UNITED STATES) |
| Trial ID | NIH-11418809 on ClinicalTrials.gov |
What this research studies
You would be paired with a trained peer who has completed pulmonary rehabilitation and receive regular phone-based support while also watching short videos of people with COPD sharing their rehab experiences. Some participants will receive the peer-support and storytelling program while others receive usual referral so the team can compare which approach helps more people begin and complete PR. The program is delivered mostly by phone and video, so much of it can be done from home. The team will track attendance in PR, breathlessness, quality of life, and healthcare visits like ER trips or hospital stays.
Who could benefit from this research
Good fit: Adults with COPD who have been referred to pulmonary rehabilitation or who recently had an exacerbation are the ideal candidates for this program.
Not a fit: People without COPD, those who are medically unstable for PR, or those unable to use phone/video communications are unlikely to benefit from participation.
Why it matters
Potential benefit: If successful, this approach could help more people enroll in and complete pulmonary rehabilitation, reduce breathlessness, and lower acute care visits.
How similar studies have performed: Telephone peer-support and storytelling have shown promise in other chronic conditions (including improved blood pressure control), but applying them to boost pulmonary rehab participation is a newer approach.
Where this research is happening
SPRINGFIELD, UNITED STATES
- BAYSTATE MEDICAL CENTER, INC. — SPRINGFIELD, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: LINDENAUER, PETER KYLE — BAYSTATE MEDICAL CENTER, INC.
- Study coordinator: LINDENAUER, PETER KYLE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Chronic Disease