Genetic causes of pontocerebellar hypoplasia

Molecular Characterization of Pontocerebellar Hypoplasia

NIH-funded research University of California, San Diego · NIH-11309591

This project looks for genetic changes and cellular pathways that cause pontocerebellar hypoplasia in children.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionUniversity of California, San Diego NIH-funded
Lab location1 site (La Jolla, United States)
Project IDNIH-11309591 on NIH RePORTER

What this research studies

You would be part of a project that uses DNA sequencing and RNA studies to find the genes and molecular problems behind pontocerebellar hypoplasia (PCH). The team has built a unique group of 248 families and applies genomics, transcriptomics, and functional lab work to find known and new disease genes. They focus on problems in RNA splicing, tRNA/mRNA processing, and genome integrity that seem to cause loss of brainstem and cerebellar neurons. The goal is to define genetic subtypes and convergent pathways that can improve diagnosis and point toward future therapies.

Who could benefit from this research

Good fit: Ideal candidates are children with pontocerebellar hypoplasia or families with a child who has unexplained cerebellar and brainstem atrophy without a genetic diagnosis.

Not a fit: People without PCH, or those whose condition already has a confirmed genetic cause unrelated to the project's aims, are unlikely to gain direct benefit.

Why it matters

Potential benefit: If successful, this work could lead to more precise genetic diagnoses and provide targets for future treatments for children with PCH.

How similar studies have performed: Prior genomic studies have already identified over 30 PCH genes and revealed splicing and genome-integrity defects, so this project extends successful approaches while exploring novel genes and mechanisms.

Where this research is happening

La Jolla, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Brain DiseasesBrain Disorders
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.