Family caregiver programs in nursing homes and dementia care outcomes
Official title: Family care to nursing home residents and state essential caregiver programs during 2020-2021: impact on dementia care outcomes
Funded at University of Rochester · NIH-11463422 · Data updated 2026-11-12
This grant studies how state essential caregiver programs during 2020-2021 affected the care and outcomes of nursing home residents with Alzheimer's disease and related dementias.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project start | September 1, 2023 |
| Project end | August 31, 2027 |
| Funding year | 2026 |
| Award (this year) | $355,824 |
| NIH project number | 4R01AG082992-02 |
| Project ID | NIH-11463422 on NIH RePORTER |
Who could benefit from this research
✓Could help
Older adults with Alzheimer's disease or related dementias residing in nursing homes, and their family caregivers, in states implementing or evaluating essential caregiver programs.
✕Less likely to help
Residents without ADRD or those not in nursing homes may not directly benefit from this study.
What this research studies
If you or a loved one with dementia lives in a long-term care facility, this research looks at how letting family members visit in person during the pandemic might have changed care quality and health outcomes. The study analyzes data from nursing homes to see whether essential caregiver policies reduced problems like hospitalizations and certain invasive procedures, and whether effects differed across racial and ethnic groups. By understanding these impacts, the project aims to inform policies that support better, more person-centered care for residents with ADRD. The research is led by the University of Rochester and uses real-world data from nursing homes during the 2020-2021 period to draw lessons for future crisis planning and caregiver involvement.
Why it matters
Potential benefit: If successful, findings could guide policies to improve dementia care in nursing homes and support families and residents during health emergencies.
How similar studies have gone: Previous work suggests caregiver access can influence care quality, but this study evaluates a specific policy period with diverse populations and may provide new, actionable insights.
Where this research is happening
-
University of Rochester
Rochester, United States Active
Researchers
- Principal investigator: Li, Yue — University of Rochester
- Study coordinator: Li, Yue
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.