Enhancing Patient Engagement in Learning Health Systems for First Episode Psychosis
Official title: Clinical Practice Data Research Project: Enhancing Patient Engagement in LHS Participant and in CSC Treatment
Funded at Feinstein Institute for Medical Research · NIH-11362321 · Data updated 2026-11-12
A large, multi-site project uses patient and clinician data to understand why people with first episode psychosis drop out of care and how to keep them engaged in treatment.
Quick facts
| Grant type | P01 program project |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Feinstein Institute for Medical Research NIH-funded |
| Lab location | 1 site (Manhasset, United States) |
| Project start | June 2, 2025 |
| Project end | May 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $264,500 |
| NIH project number | 5P01MH139136-02 |
| Project ID | NIH-11362321 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals with first episode psychosis receiving Coordinated Specialty Care who have difficulties completing PROs assessments or staying in treatment.
✕Less likely to help
Patients who are not enrolled in CSC or whose engagement needs are unrelated to PROs data collection.
What this research studies
This project analyzes data from a standardized battery that includes both clinician- and patient-reported outcomes to see who disengages from assessments or treatment. It will supplement existing data with patient views on how burdensome treatment requirements feel and with interviews to understand barriers. Findings will inform a collaborative effort to boost engagement in PROs and keep people connected with Coordinated Specialty Care. The goal is to improve retention and the overall success of CSC for first episode psychosis.
Why it matters
Potential benefit: If successful, patients with first episode psychosis may stay engaged longer in CSC, receiving more of the program’s benefits.
How similar studies have gone: Previous work shows data-informed approaches can improve engagement, though integrating PROs and treatment retention remains a challenge.
Where this research is happening
-
Feinstein Institute for Medical Research
Manhasset, United States Active
Researchers
- Principal investigator: Robinson, Delbert G — Feinstein Institute for Medical Research
- Study coordinator: Robinson, Delbert G
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.