Decision support program for older adults with acute myeloid leukemia and caregivers
A decisional intervention for older adults with acute myeloid leukemia and their caregivers
['FUNDING_R01'] · UNIVERSITY OF ROCHESTER · NIH-11252517
This program offers decision tools and support to help older adults with acute myeloid leukemia and their caregivers understand treatment choices and manage distress.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF ROCHESTER (nih funded) |
| Locations | 1 site (ROCHESTER, UNITED STATES) |
| Trial ID | NIH-11252517 on ClinicalTrials.gov |
What this research studies
If you join, you and your caregiver will receive a multilevel decision-support program called UR-GOAL that was co-designed with patients and caregivers. The program gives clear information about AML, treatment options, and likely outcomes, plus exercises to clarify what matters most to you. It also includes caregiver-focused support and strategies to reduce stress during rapid treatment decisions. Researchers will follow participants over time to see how the program affects decision-making, distress, and quality of life.
Who could benefit from this research
Good fit: Adults aged 60 and older with a diagnosis of acute myeloid leukemia and their primary caregivers, particularly those facing immediate treatment decisions.
Not a fit: Younger adults with AML, people not involved in decision-making, or those unable to participate (for example due to severe cognitive impairment or lack of a caregiver) may not benefit from this program.
Why it matters
Potential benefit: It could help reduce emotional distress, improve quality of life, and support treatment decisions that match patient goals.
How similar studies have performed: Shared decision-making programs have improved decision quality and reduced distress in other cancer settings, and the team's prior pilot of UR-GOAL demonstrated feasibility though larger effectiveness studies are still needed.
Where this research is happening
ROCHESTER, UNITED STATES
- UNIVERSITY OF ROCHESTER — ROCHESTER, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: LOH, KAH POH — UNIVERSITY OF ROCHESTER
- Study coordinator: LOH, KAH POH
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Advanced Cancer, Cancers