DECIDES 2.0: a decision aid to empower adolescents and young adults with cancer
Official title: Evaluating and Implementing a decision support intervention (DECIDES) for adolescents and young adults newly diagnosed with cancer
Funded at Children's Hosp of Philadelphia · NIH-11450762 · Data updated 2026-11-12
A new, easy-to-use online and mobile tool helps teens and young adults with cancer make informed treatment choices together with their families and doctors.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Children's Hosp of Philadelphia NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project start | June 1, 2026 |
| Project end | May 31, 2031 |
| Funding year | 2026 |
| Award (this year) | $749,133 |
| NIH project number | 1R01CA309542-01A1 |
| Project ID | NIH-11450762 on NIH RePORTER |
Who could benefit from this research
✓Could help
AYAs aged 15-24 who are newly diagnosed with cancer and their caregivers, in oncology care settings.
✕Less likely to help
AYAs not engaged in decision-making or those not using digital tools may see limited benefit.
What this research studies
Young people aged 15-24 facing cancer often lose a voice in treatment decisions. DECIDES 2.0 builds on a proven web-based tool to support shared decision-making by providing tailored information, questions to ask, and guidance for conversations with care teams. The upcoming randomized trial will test whether the enhanced interactive mobile version improves decision quality, reduces regret, and strengthens self-management alongside standard care. If successful, this approach could make care more collaborative, personal, and the experience less overwhelming for AYAs and their caregivers.
Why it matters
Potential benefit: If successful, the tool could help AYAs make more confident treatment choices and improve their long-term self-management and satisfaction with care.
How similar studies have gone: Past pilots of DECIDES showed promise in supporting AYA decision-making, with ongoing work to optimize for mobile use.
Where this research is happening
-
Children's Hosp of Philadelphia
Philadelphia, United States Active
Researchers
- Principal investigator: Schwartz, Lisa a — Children's Hosp of Philadelphia
- Study coordinator: Schwartz, Lisa a
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.