Data coordination for Fetal Alcohol Spectrum Disorders research
Official title: Collaborative Initiative on Fetal Alcohol Spectrum Disorders (CIFASD) Data Coordination Resource
Funded at Indiana University Indianapolis · NIH-11345873 · Data updated 2026-11-12
A national collaboration coordinates data and sharing to help understand and improve care for children affected by prenatal alcohol exposure and FASD.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Indiana University Indianapolis NIH-funded |
| Lab location | 1 site (Indianapolis, United States) |
| Project start | August 10, 2022 |
| Project end | April 30, 2027 |
| Funding year | 2026 |
| Award (this year) | $198,802 |
| NIH project number | 5U24AA030169-05 |
| Project ID | NIH-11345873 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children with or at risk for FASD, or their families, who could participate in related CIFASD studies and benefit from improved understanding and care.
✕Less likely to help
This grant itself does not involve direct patient participation; benefits accrue through downstream research and improved data infrastructure.
What this research studies
This project coordinates data from multiple CIFASD studies focused on fetal alcohol spectrum disorders, ensuring data are collected, stored, and shared in line with NIH policies. It works to deposit information into the NIAAA Data Archive and to facilitate collaboration among basic scientists and clinicians studying FASD in children. The effort supports researchers and clinicians by providing central management for datasets, consent processes, and project-wide data sharing. Through this coordination, families and patients may benefit from more rapid translation of findings into interventions and supports for affected children.
Why it matters
Potential benefit: Could speed up the development of effective interventions and supports for children with FASD by enabling better data sharing and collaboration.
How similar studies have gone: Past CIFASD efforts have shown value in coordinating data and informing interventions for FASD across multiple sites.
Where this research is happening
-
Indiana University Indianapolis
Indianapolis, United States Active
Researchers
- Principal investigator: Wetherill, Leah — Indiana University Indianapolis
- Study coordinator: Wetherill, Leah
Related research
Other NIH-funded projects on the same topics.
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Cellular mechanisms shaping fetal alcohol spectrum disorders
This NIH grant studies how alcohol exposure before birth damages development at the cellular level, with potential to improve understanding and care for individuals affected by FASD.
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Web tools to screen children for effects of prenatal alcohol exposure
This project uses online tools to check children ages 6–17 for physical, thinking, and behavior signs linked to prenatal alcohol exposure.
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Choline Genetics and Fetal Alcohol Spectrum Disorders in Children
This study looks at how genetic differences in choline metabolism affect cognitive and behavioral outcomes in children with prenatal alcohol exposure who may benefit from choline supplementation.
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Improved FASD screening for kids using BRAIN-online in Spanish
A web-based, Spanish-enabled screening tool helps identify signs of fetal alcohol spectrum disorders in children to guide further evaluation and support.
-
How prenatal alcohol exposure harms hearing development
Researchers are looking at how alcohol exposure during pregnancy changes the brain cells that help process sound in mice, to better understand hearing problems in children with fetal alcohol spectrum disorders.
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Prenatal Alcohol Gene-by-Exposure study: how maternal and child genetics influence FASD
A big study will look at genes in mothers and their children to understand why some babies exposed to alcohol before birth develop FASD and others don’t.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.