Clarified imaging reports to reduce anxiety for adult survivors of pediatric brain cancer
Official title: Clarifying Imaging Reports to Reduce Anxiety and Improve Understanding of Care Needs Among Adult Survivors of Pediatric Brain Cancer
Funded at Washington University · NIH-11435742 · Data updated 2026-11-12
Adult survivors of pediatric brain cancer may get anxious about scan results, and clearer imaging reports delivered through patient portals could help reduce worry and improve understanding.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Washington University NIH-funded |
| Lab location | 1 site (Saint Louis, United States) |
| Project start | September 1, 2026 |
| Project end | August 31, 2029 |
| Funding year | 2026 |
| Award (this year) | $882,444 |
| NIH project number | 1R01CA315233-01 |
| Project ID | NIH-11435742 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults (18 and older) who survived pediatric brain cancer and are in active follow-up care.
✕Less likely to help
Adults not receiving surveillance imaging or not using patient portals may see limited or no benefit.
What this research studies
This project will involve talking with adult survivors and their care teams to learn preferences for receiving surveillance results. It will then create a clear flow chart and user-friendly imaging reports designed for patient portals. The study aims to reduce anxiety and fear of recurrence, and help survivors understand what their follow-up care needs are as they transition to self-management in adulthood.
Why it matters
Potential benefit: If successful, clearer imaging reports could lessen anxiety and improve quality of life for adult survivors of pediatric brain cancer.
How similar studies have gone: There is limited evidence in this specific survivor group; prior work suggests that clearer reports and patient-friendly communication can reduce anxiety in other cancer populations.
Where this research is happening
-
Washington University
Saint Louis, United States Active
Researchers
- Principal investigator: Politi, Mary C — Washington University
- Study coordinator: Politi, Mary C
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.