CARE@HOME: a digital tool to help families prevent serious health events for children with neurologic impairment
Official title: CARE@HOME, a digital health intervention to prevent serious health events in children with neurologic impairment
Funded at University of Wisconsin-Madison · NIH-11431856 · Data updated 2026-11-12
A mobile health tool helps families care for children with brain or nerve conditions to prevent hospitalizations and serious health events at home.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Wisconsin-Madison NIH-funded |
| Lab location | 1 site (Madison, United States) |
| Project start | September 11, 2026 |
| Project end | August 30, 2031 |
| Funding year | 2026 |
| Award (this year) | $737,192 |
| NIH project number | 1R01HD122814-01 |
| Project ID | NIH-11431856 on NIH RePORTER |
Who could benefit from this research
✓Could help
Families caring for children aged 0-11 with central nervous system conditions and high medical complexity who are responsible for acute illness management.
✕Less likely to help
Children without a diagnosed neurologic impairment or those not involved in home caregiving for acute illnesses may not benefit.
What this research studies
This grant aims to adapt an existing mobile health platform into CARE@HOME to support caregivers of children with neurologic impairments. The app is designed to boost caregiver confidence in recognizing and responding to acute illness, with the goal of preventing death or hospitalization. The project will test usability, feasibility, and impact on caregiver self-efficacy and health outcomes in real-world settings. Families will use the digital tool to monitor symptoms, guidance for action, and timely communication with healthcare providers. The study will involve pediatric patients and their caregivers across applicable clinical settings connected to the University of Wisconsin–Madison team.
Why it matters
Potential benefit: If successful, CARE@HOME could reduce serious health events and hospital stays for children with neurologic impairment by empowering families with better at-home management.
How similar studies have gone: Prior work with the @HOME platform suggests that mobile health supports can be usable and feasible; this project extends that approach to a higher-risk pediatric population.
Where this research is happening
-
University of Wisconsin-Madison
Madison, United States Active
Researchers
- Principal investigator: Coller, Ryan J — University of Wisconsin-Madison
- Study coordinator: Coller, Ryan J
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.