Caregiver-reported Dystonia Impact in Cerebral Palsy (CARDI-CP)
Official title: Caregiver Reported Dystonia Impact in Cerebral Palsy: CARDI-CP
Funded at Washington University · NIH-11277150 · Data updated 2026-11-12
A caregiver-facing project to create an easy, reliable way for families to describe how dystonia affects children and adults with cerebral palsy.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Washington University NIH-funded |
| Lab location | 1 site (Saint Louis, United States) |
| Project start | September 1, 2026 |
| Project end | August 31, 2031 |
| Funding year | 2026 |
| Award (this year) | $667,506 |
| NIH project number | 1R01HD120421-01 |
| Project ID | NIH-11277150 on NIH RePORTER |
Who could benefit from this research
✓Could help
Caregivers and patients with cerebral palsy across a wide age range (including children and adults) who experience dystonia.
✕Less likely to help
Patients with CP who do not experience dystonia or whose care is not influenced by dystonia measures may see limited benefit.
What this research studies
This project aims to develop a caregiver-reported dystonia impact scale for people with cerebral palsy, adding a practical tool to capture how dystonia affects daily function beyond existing spasticity measures. Researchers will collect input from caregivers and patients to design a scale that works regardless of caregivers’ prior knowledge about dystonia. The team will test the scale's clarity, reliability, and responsiveness in real-world settings to support future clinical trials and care decisions. The goal is to improve identification of meaningful dystonia effects and guide targeted treatments.
Why it matters
Potential benefit: If successful, the tool could help doctors and families pinpoint how dystonia truly affects daily life and guide more personalized treatment choices.
How similar studies have gone: Preliminary data suggest caregiver input can identify dystonia impacts not captured by clinician scales, but a standardized caregiver-reported tool is still needed.
Where this research is happening
-
Washington University
Saint Louis, United States Active
Researchers
- Principal investigator: Aravamuthan, Bhooma — Washington University
- Study coordinator: Aravamuthan, Bhooma
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.