Biobank for neurological conditions (BioSEND)
Biospecimen Exchange for Neurological Disorders (BioSEND)
Collects and shares blood, spinal fluid, and other samples from people with neurological conditions to help researchers find better tests and treatments.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Indiana University Indianapolis NIH-funded |
| Lab location | 1 site (Indianapolis, United States) |
| Project ID | NIH-11140459 on NIH RePORTER |
What this research studies
This program collects, processes, and stores blood, plasma, serum, cerebrospinal fluid, and other biospecimens from people with neurological disorders, including chronic fatigue syndrome. Samples are processed under standardized protocols, cataloged with de-identified clinical information, and kept at Indiana University for approved research use. Researchers can request aliquots through an application process, and BioSEND tracks distributions and quality control for each sample. Donors who provide samples and permission for data sharing help multiple research teams look for biomarkers and new therapies.
Who could benefit from this research
Good fit: People diagnosed with chronic fatigue syndrome or other neurological disorders who can donate blood, cerebrospinal fluid, or related clinical data and agree to long-term storage and sharing of their samples.
Not a fit: Donating samples to the biobank is for research and typically does not provide direct or immediate clinical benefit or personal medical results.
Why it matters
Potential benefit: By making high-quality patient samples widely available, this repository could speed discovery of biomarkers and new treatments for neurological conditions.
How similar studies have performed: Other disease-focused biobanks and specimen-sharing programs have enabled biomarker discoveries and BioSEND has already distributed samples to many investigators for research.
Where this research is happening
Indianapolis, United States
- Indiana University Indianapolis — Indianapolis, United States (Active)
Researchers
- Principal investigator: Foroud, Tatiana M. — Indiana University Indianapolis
- Study coordinator: Foroud, Tatiana M.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.