Advancing Developmental Research with SEED Data to Understand ASD Across Ages
Official title: Component A: North Carolina - Advancing Developmental Research using SEED and SEED Follow-up data
Funded at Univ of North Carolina Chapel Hill · NIH-11581229 · Data updated 2026-11-12
This grant uses the SEED data to learn how autism spectrum disorder appears and changes from early childhood through adolescence and adulthood in kids and families.
Quick facts
| Grant type | U01 cooperative agreement |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Univ of North Carolina Chapel Hill NIH-funded |
| Lab location | 1 site (Chapel Hill, United States) |
| Project start | July 1, 2021 |
| Project end | June 30, 2027 |
| Funding year | 2025 |
| Award (this year) | $250,000 |
| NIH project number | 6U01DD001293-05M002 |
| Project ID | NIH-11581229 on NIH RePORTER |
Who could benefit from this research
✓Could help
Children with ASD or with developmental disabilities who were part of the SEED study and their families, now followed into adolescence or adulthood.
✕Less likely to help
Individuals not connected to the SEED study or those outside the study’s life-course focus may not directly benefit.
What this research studies
SEED follows thousands of children with and without autism to collect deep information on symptoms, development, and risk factors. The project aims to link early-life data to later outcomes so doctors can better predict and support ASD across the life course. By combining genetics, health history, and family environment data, researchers hope to uncover patterns that explain why ASD looks different in individuals and how it progresses. The findings could guide future prevention, diagnosis, and intervention efforts that are relevant for families at multiple life stages.
Why it matters
Potential benefit: Better understanding of how ASD develops over time could lead to earlier detection and more tailored support for children as they grow.
How similar studies have gone: The SEED program has already yielded extensive data; this follow-up work seeks to extend findings into later life stages.
Where this research is happening
-
Univ of North Carolina Chapel Hill
Chapel Hill, United States Active
Researchers
- Principal investigator: Daniels, Julie L — Univ of North Carolina Chapel Hill
- Study coordinator: Daniels, Julie L
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.