Administrative Core supporting pediatric therapeutic development for Myotonic Dystrophy
Official title: Administrative Core
Funded at Virginia Commonwealth University · NIH-11423654 · Data updated 2026-11-12
This NIH grant funds a center core to accelerate therapies for Myotonic Dystrophy, including pediatric considerations and collaboration with patients and industry to move promising ideas toward real treatments.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Virginia Commonwealth University NIH-funded |
| Lab location | 1 site (Richmond, United States) |
| Project start | September 25, 2025 |
| Project end | August 31, 2030 |
| Funding year | 2026 |
| Award (this year) | $146,127 |
| NIH project number | 5P50AR085906-02 |
| Project ID | NIH-11423654 on NIH RePORTER |
Who could benefit from this research
✓Could help
Patients with Myotonic Dystrophy and their families, particularly pediatric patients, may benefit through future therapeutic advances.
✕Less likely to help
No direct patient benefit is guaranteed; outcomes depend on progression of collaborative efforts and external therapeutic development.
What this research studies
This grant supports a Center that works with researchers, clinicians, patient groups, and industry to speed up therapeutic development for Myotonic Dystrophy, with a special focus on children. It emphasizes team science, virtual collaboration, and stakeholder engagement to overcome gaps in therapy development. The Administrative Core coordinates projects, meetings, and milestones, while learning from remote collaboration tools used during the public health emergency. The Center also aims to develop junior scientists who focus on translating research into therapies for DM. In addition, it seeks to promote external therapeutic development and engage patients directly in shaping the research agenda.
Why it matters
Potential benefit: Could help shorten the time to bring effective therapies to people with Myotonic Dystrophy, including children.
How similar studies have gone: Previous DM-focused collaborations have shown that coordinated, multi-stakeholder efforts can accelerate therapy development; this core extends those concepts to include pediatric considerations.
Where this research is happening
-
Virginia Commonwealth University
Richmond, United States Active
Researchers
- Principal investigator: Cleary, John D — Virginia Commonwealth University
- Study coordinator: Cleary, John D
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.