Access for All in ALS: West Coordinating Center for ALS patient care and research
Official title: Access for All in ALS (ALL ALS) West Clinical Coordinating Center
Funded at St. Joseph's Hospital and Medical Center · NIH-11621107 · Data updated 2026-11-12
A national ALS research network is building a West Coast coordinating center to collect and study high-quality patient samples and data to speed better ALS therapies.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | St. Joseph's Hospital and Medical Center NIH-funded |
| Lab location | 1 site (Phoenix, United States) |
| Project start | September 25, 2023 |
| Project end | September 24, 2028 |
| Funding year | 2026 |
| Award (this year) | $25,322,772 |
| NIH project number | 3OT2NS136939-01S3 |
| Project ID | NIH-11621107 on NIH RePORTER |
Who could benefit from this research
✓Could help
Individuals diagnosed with ALS who can contribute longitudinal clinical data and biosamples.
✕Less likely to help
Patients not enrolled in the clinical sites or who do not provide samples may not directly benefit from the research.
What this research studies
This project creates a national ALS clinical research consortium with multiple sites across the US and Puerto Rico, led by the West Coordinating Center at Barrow Neurological Institute. It focuses on collecting clinically rich, longitudinal biosamples from people with ALS and using downstream analyses to inform drug development. The effort involves coordinating clinical activities, data management, and regulatory science to support faster translation of research into treatments. Participants may contribute biosamples, clinical information, and follow-up data to help researchers understand disease progression and test potential therapies. The program aims to accelerate the path from discovery to approved drugs that can extend life and improve quality of life for people living with ALS.
Why it matters
Potential benefit: Potentially faster access to effective ALS therapies and improved understanding of disease progression.
How similar studies have gone: Similar large ALS biobanking and clinical consortium efforts have shown that standardized biosample collection can accelerate drug development.
Where this research is happening
-
St. Joseph's Hospital and Medical Center
Phoenix, United States Active
Researchers
- Principal investigator: Bowser, Robert P — St. Joseph's Hospital and Medical Center
- Study coordinator: Bowser, Robert P
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.