Condition
Shwachman-Diamond Syndrome clinical trials and research
As of November 12, 2026, Find a Trial lists 3 Shwachman-Diamond Syndrome clinical trials that are recruiting, in United States. Every study is explained in plain English. Data from ClinicalTrials.gov and NIH RePORTER, updated November 12, 2026.
- 3Clinical trials
- 1Country
Newest Shwachman-Diamond Syndrome clinical trials
| Study | Phase | Where | Status | Registered |
|---|---|---|---|---|
| Global Shwachman-Diamond Syndrome Patient Survey and Collaboration Platform | — | Woburn, Massachusetts | Recruiting | May 31, 2025 |
| Registry for Shwachman-Diamond Syndrome and related conditions | — | Aurora, Colorado and 3 other locations | Recruiting | Sep 28, 2023 |
| Understanding cancer risks in inherited bone marrow failure syndromes | — | Bethesda, Maryland and 1 other locations | Recruiting | Nov 30, 2001 |
All recruiting trials (3)
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Global Shwachman-Diamond Syndrome Patient Survey and Collaboration Platform
An online program for people with Shwachman-Diamond Syndrome and their families to share health experiences, join a global community, and receive early information about research and clinical opportunities.
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Registry for Shwachman-Diamond Syndrome and related conditions
This study is collecting health information and samples from people with Shwachman-Diamond Syndrome to learn more about the condition and improve treatment options.
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Understanding cancer risks in inherited bone marrow failure syndromes
This study is trying to understand the cancer risks in people with inherited bone marrow failure syndromes to help improve screening and prevention for families at risk.
Related topics
Quick answers
How many Shwachman-Diamond Syndrome clinical trials are recruiting right now?
3, as of November 12, 2026. We update this list each time we refresh our data from ClinicalTrials.gov.
Where are these trials running?
All of them have sites in United States. Each study page lists its sites and which ones are recruiting.
How do I join one?
Open a study, check the "Is this trial a fit for you?" section, then contact the study team listed on the page. They will ask a few screening questions. Asking is free and does not commit you to anything. Talk it over with your doctor first.
Find the studies that fit you
A list is a starting point. Tell us your situation in your own words and we'll rank the studies that match and explain why. It's free and needs no account.