Understanding pregnancy outcomes in craniopharyngioma patients

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to explore the outcomes of pregnancy in patients with craniopharyngioma, a rare type of brain tumor. It will involve collecting data through questionnaires from individuals aged 18 and older who have been diagnosed with or treated for craniopharyngioma. The study seeks to fill the gap in existing literature regarding the impact of pregnancy on tumor progression and patient health. By analyzing the experiences of these patients, the research hopes to provide insights into the management of pregnancies in this unique population.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Patients aged at least 18 years old
* Patients with or having had a craniopharyngioma
* Patients informed and not opposed to participation in research

Exclusion Criteria:

* Patients who don't speak french
* Patients without medical care insurance
* Patients under legal protection

Where it's running

• Pitié-Salpêtrière hospital
  Paris, France Recruiting

Study contacts

• Study coordinator: Anne BACHELOT, MD, PhD
• Email: anne.bachelot@aphp.fr
• Phone: 01 42 16 02 46

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Anti-fog suction device during endoscopic pituitary surgery

  This trial tests whether an anti-fog suction device helps keep the view clear during pituitary tumor surgery and whether it lowers brain-fluid infection risk compared with the usual water-squirting method.

  Recruiting West China Hospital · Chengdu, Sichuan · NCT07316101

• Trop‑2 PET imaging for craniopharyngioma diagnosis

  This will test whether a Trop‑2–targeting PET tracer (68Ga‑MY6349) can help diagnose craniopharyngioma in people scheduled for surgical removal.

  Recruiting Beijing Tiantan Hospital · Beijing, Beijing Municipality · NCT07177482

• Investigating the effects of endoscopic skull base surgery on smell

  This study tests how endoscopic skull base surgery affects the sense of smell in patients to better understand any smell-related problems that might happen after the surgery.

  Recruiting Universitaire Ziekenhuizen KU Leuven · Leuven, Vlaams-Brabant and 2 other locations · NCT06874426

• Treatment for BRAF mutated papillary craniopharyngioma

  This study is testing if a combination of two medications can help shrink tumors in patients with a specific type of brain tumor before they have surgery.

  Recruiting Phase 2 Skane University Hospital · Lund · NCT05525273

• Using Tovorafenib to treat craniopharyngioma in children and young adults

  This study is testing if a new drug called Tovorafenib can safely help children and young adults with craniopharyngioma live better and longer without their cancer getting worse.

  Recruiting at 20 sites Phase 2 University of California, San Francisco · Birmingham, Alabama and 19 other locations · NCT05465174

• Proton therapy for brain tumors

  This study is testing whether proton therapy can be a better treatment option for patients with certain brain tumors by comparing it to traditional radiation methods to see if it can reduce harm to healthy tissues.

  Recruiting at 3 sites Maastricht Radiation Oncology · Maastricht, Limburg and 2 other locations · NCT04648462

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.