Understanding difficult-to-treat inflammatory bowel disease

Prevalence, Characteristics, Management, and Outcomes of Difficult-to-treat Inflammatory Bowel Disease: Multicenter Retrospective Study

Observational IRCCS Ospedale San Raffaele · NCT06551194

This study looks at how common difficult-to-treat inflammatory bowel disease is among adults with Crohn's disease or ulcerative colitis and what factors might make it harder to manage.

Quick facts

Study typeObservational
Enrollment972 (estimated)
Ages18 Years to 69 Years
SexAll
SponsorIRCCS Ospedale San Raffaele Academic / other
Locations1 site (Milan)
Trial IDNCT06551194 on ClinicalTrials.gov

What this trial studies

This observational study aims to evaluate the prevalence and risk factors associated with difficult-to-treat inflammatory bowel disease (DTT-IBD) among adult patients diagnosed with Crohn's disease or ulcerative colitis. It utilizes a multicentre retrospective cross-sectional approach, focusing on patients who have had at least one visit with a gastroenterology specialist since January 2019. The study is guided by the recent criteria established by the International Organisation for the Study of IBD, which defines DTT-IBD based on treatment failures and other clinical complexities. By identifying the prevalence and demographic variables affecting DTT-IBD, the study seeks to inform future therapeutic strategies.

Who should consider this trial

Good fit: Ideal candidates for this study are adult patients aged 18 and older diagnosed with Crohn's disease, ulcerative colitis, or undetermined inflammatory bowel disease.

Not a fit: Patients with unconfirmed diagnoses of inflammatory bowel disease or those under 18 years of age will not benefit from this study.

Why it matters

Potential benefit: If successful, this study could lead to improved understanding and management strategies for patients with difficult-to-treat inflammatory bowel disease.

How similar studies have performed: While the study addresses a recent definition of DTT-IBD, similar studies have shown success in identifying treatment-resistant patient populations, suggesting potential for meaningful insights.

Eligibility criteria

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Adult patients (age ≥18)
* Diagnosis of IBD: Crohn's disease (CD), ulcerative colitis (UC), or undetermined IBD (IBD-U)
* A least one visit with a gastroenterology specialist after 01/01/2019

Exclusion Criteria:

* Unconfirmed IBD diagnosis
* Consultation with non-gastroenterology specialists
* Consultation older than January 1st 2019
* Pediatric patients (Age \<18). Pediatric population will be excluded as the DTT-IBD criteria apply to adult patients only.

Where this trial is running

Milan

Study contacts

How to participate

  1. Review the eligibility criteria above with your treating physician.
  2. Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
  3. Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions Assessment of the Criteria and Risk Factors for DTT-IBD
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.