Clinical trial Recruiting at 1 site Observational Ages 17 to 18

Transitioning from pediatric to adult epilepsy care

Official title: Transition to Adult Care in Epilepsy

Run by IRCCS National Neurological Institute "C. Mondino" Foundation · NCT06778772 · Data updated 2026-11-12

This study is trying to see how ready young people with epilepsy and their caregivers are to switch from pediatric to adult care, focusing on their medical and personal needs during this important change.

More Epilepsy trials

Quick facts

Study typeObservational
Ages17 Years to 18 Years
SexAll
Enrollment90 (estimated)
SponsorIRCCS National Neurological Institute "C. Mondino" Foundation
Academic / other
Locations1 site (Pavia)
StatusRecruiting
StartedJune 1, 2023
Main results expectedMay 1, 2025
Study endsJune 1, 2025
Registry record updatedJanuary 16, 2025
Trial IDNCT06778772 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates are patients aged 17 or 18 years diagnosed with focal or generalized epilepsy who require ongoing follow-up.

Probably not a fit

Patients who are considered 'cured' from epilepsy and do not require continued follow-up will not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to evaluate the readiness of patients and caregivers for the transition from pediatric to adult epilepsy care. It involves comparing the Transition Readiness Assessment (TRAQ) questionnaire results at the last pediatric visit and the first adult neurology visit. The study focuses on addressing the medical, psychosocial, and educational needs of patients with epilepsy, particularly those with complex comorbidities. By implementing a collaborative transition model, the study seeks to improve multidisciplinary care during this critical period.

Why it matters

Potential benefit: If successful, this study could enhance the quality of care and support for young adults with epilepsy as they transition to adult services.

How similar studies have gone: Other studies have shown the importance of structured transition programs, indicating potential success for this approach.

Who can join: the full rules

Show full inclusion / exclusion criteria
\*\*Inclusion Criteria:\*\*

* Patients aged 17 or 18 years.
* Diagnosed with focal or generalized epilepsy, regardless of etiology and neuropsychological, neuropsychiatric, or internal comorbidities.
* Those for whom continued epileptology follow-up is required according to standard care guidelines.

\*\*Exclusion Criteria:\*\*

* Patients undergoing EEG only for the detection of EEG abnormalities without a diagnosis of epilepsy.
* Patients for whom the last neuropsychiatric evaluation does not recommend continued epileptology follow-up (patients considered "cured" from epilepsy according to ILAE guidelines).

Where it's running

  • Child Neuropsichiatry
    Pavia, Italy
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.