Clinical trial Recruiting at 1 site Observational Ages 0 and up

Survey on COVID-19 impact in patients with primary immune deficiency

Official title: Worldwide COVID-19 in Children and Adult Patients With Primary ImmunoDeficiencies (PID) Survey

Run by Imagine Institute · NCT04459689 · Data updated 2026-11-12

This study is trying to learn how COVID-19 has affected people with primary immune deficiencies to better understand their experiences and outcomes.

More COVID-19 trials

Quick facts

Study typeObservational
Ages0 Years and up
SexAll
Enrollment200 (estimated)
SponsorImagine Institute
Academic / other
Locations1 site (Paris)
StatusRecruiting
StartedMarch 15, 2020
Main results expectedFebruary 18, 2027
Study endsFebruary 18, 2027
Registry record updatedSeptember 10, 2026
Trial IDNCT04459689 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are individuals diagnosed with a primary immune deficiency who have experienced COVID-19.

Probably not a fit

Patients with secondary immune deficiencies or other coronavirus infections may not benefit from this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to gather data on the effects of COVID-19 on individuals diagnosed with primary immune deficiencies (PID). It follows an initial phase that assessed the number of affected PID patients and the impact of SARS-CoV-2 on this vulnerable population. The survey is conducted through a secure online platform, ensuring compliance with GDPR regulations, and is approved by the relevant ethics committee. The goal is to better understand the outcomes and consequences of COVID-19 in patients with PID.

Why it matters

Potential benefit: If successful, this study could provide critical insights into the risks and management of COVID-19 in patients with primary immune deficiencies.

How similar studies have gone: While there have been studies on COVID-19 impacts in various populations, this specific focus on primary immune deficiency is novel and has not been extensively tested.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Diagnosed with a Primary Immune Deficiency
* COVID-19 (proven or probable)

Exclusion Criteria:

* Secondary Immune Deficiency
* Other Coronovirus infection

Where it's running

  • Imagine Institute
    Paris, France
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.