Review of medical records for patients with hereditary bleeding disorders
Hammersmith Hospital Patients With Pulmonary Arteriovenous Malformations (PAVMs) and Hereditary Haemorrhagic Telangiectasia
This study looks at medical records of people with hereditary bleeding disorders to see if certain traits can help predict complications like strokes or pregnancy-related issues.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Sex | All |
| Sponsor | Imperial College London Academic / other |
| Locations | 1 site (London) |
| Trial ID | NCT00230685 on ClinicalTrials.gov |
What this trial studies
This observational study focuses on individuals with hereditary hemorrhagic telangiectasia and pulmonary arteriovenous malformations at Hammersmith Hospital in London. The study aims to analyze clinical data collected since 1985 to identify specific characteristics that may predict complications such as strokes, brain abscesses, pregnancy-related issues, or pulmonary hypertension. By reviewing case notes, researchers hope to enhance understanding of the condition and improve patient management.
Who should consider this trial
Good fit: Ideal candidates for this study are patients attending Hammersmith Hospital with a diagnosis of hereditary hemorrhagic telangiectasia.
Not a fit: Patients who do not attend Hammersmith Hospital or do not have hereditary hemorrhagic telangiectasia will not benefit from this study.
Why it matters
Potential benefit: If successful, this study could lead to better prediction and management of complications in patients with hereditary hemorrhagic telangiectasia.
How similar studies have performed: While this study builds on existing clinical practices, similar observational studies have shown success in identifying risk factors for complications in hereditary conditions.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Patients attending Hammersmith Hospital Exclusion Criteria: * None
Where this trial is running
London
- Respiratory Medicine, Hammersmith Hospital — London, United Kingdom (Recruiting)
Study contacts
- Principal investigator: Claire L Shovlin — Imperial College London
- Study coordinator: Claire L Shovlin
- Email: c.shovlin@imperial.ac.uk
- Phone: 0208 383 1000
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.