Research database for Still's disease in children and adults
Auvergne-Rhône-Alpes-Limousin Research Database for Still's Diseases in Children and Adults
Hospices Civils de Lyon · NCT05055882
This study is creating a database to collect information from children and adults with Still's disease to better understand the condition and improve how it's diagnosed and treated.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 400 (estimated) |
| Ages | 3 Years and up |
| Sex | All |
| Sponsor | Hospices Civils de Lyon (other) |
| Locations | 16 sites (Valence, Drome and 15 other locations) |
| Trial ID | NCT05055882 on ClinicalTrials.gov |
What this trial studies
This observational study aims to create a comprehensive research database for individuals diagnosed with Still's disease, both in children and adults, at hospitals in the Auvergne-Rhône-Alpes-Limousin region. The study focuses on collecting clinical and biological data to better understand the disease's characteristics and evolution. By documenting the experiences of patients with this rare autoinflammatory condition, the research seeks to enhance diagnostic criteria and treatment approaches. The study will include participants from various hospitals in the region, ensuring a diverse patient population.
Who should consider this trial
Good fit: Ideal candidates for this study are children and adults diagnosed with Still's disease receiving care at participating hospitals in the Auvergne-Rhône-Alpes-Limousin region.
Not a fit: Patients who do not have a diagnosis of Still's disease or are not receiving treatment in the specified hospitals will not benefit from this study.
Why it matters
Potential benefit: If successful, this research could lead to improved diagnosis and management strategies for patients with Still's disease.
How similar studies have performed: While there may be limited studies specifically focused on Still's disease, the approach of creating a research database for rare diseases has shown promise in other conditions.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * children and adult diagnosed with Still's disease in Auvergne-Rhône-Alpes-Limousin hospital Exclusion Criteria: * Not applicable
Where this trial is running
Valence, Drome and 15 other locations
- Centre Hospitalier de Valence — Valence, Drome, France (RECRUITING)
- Hôpital de la Croix Rousse — Lyon, Rhone Alpes, France (RECRUITING)
- Centre Hospitalier d'Annecy — Annecy, France (RECRUITING)
- Centre Hospitalier de Bourg en Bresse — Bourg en Bresse, France (RECRUITING)
- Centre Hospitalier Bourgoin Jallieu — Bourgoin-Jallieu, France (RECRUITING)
- Centre Hospitalier de Chambéry — Chambéry, France (RECRUITING)
- Centre Hospitalier de Châlon sur Saône — Châlon sur Saône, France (RECRUITING)
- Centre Hospitalier Alpes-Léman (CHAL) — Contamine-sur-Arve, France (RECRUITING)
- Centre Hospitalier du puy en velay — Le Puy-en-Velay, France (RECRUITING)
- Centre Hospitalier de Limoges — Limoges, France (RECRUITING)
- Hopital Saint Luc Saint Joseph — Lyon, France (RECRUITING)
- Hospices Civils de Lyon - Edouard Herriot — Lyon, France (RECRUITING)
- Centre Hospitalier de Montélimar — Montélimar, France (RECRUITING)
- Centre Hospitalier Vienne — Vienne, France (RECRUITING)
- Centre Hospitalier de Villefranche — Villefranche-sur-Saône, France (RECRUITING)
- Médipôle de Villeurbanne — Villeurbanne, France (RECRUITING)
Study contacts
- Study coordinator: Yvan Jamilloux, Dr
- Email: yvan.jamilloux@chu-lyon.fr
- Phone: +33426732636
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Still Disease