Registry of people with chronic thromboembolic pulmonary hypertension in Russia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational registry enrolls people with confirmed CTEPH treated at a national cardiology center in Moscow and combines retrospective and prospective clinical data. It records demographics, medical history, symptoms, hospitalizations, imaging and hemodynamic results, and treatments including pulmonary endarterectomy (PEA), balloon pulmonary angioplasty (BPA), and pulmonary hypertension-specific medications. The registry aims to identify factors that influence hospitalization rates, time to clinical deterioration, and survival by analyzing associations between baseline characteristics, anamnestic data, treatment regimens, and outcomes. Preliminary retrospective data on about 300 patients from 2012–2024 are already available to inform ongoing analyses.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Presence of a confirmed diagnosis of CTEPH

Exclusion Criteria:

* Presence of pulmonary hypertension of a different etiology than CTEPH

Where it's running

• National Medical Research Center of Cardiology after academician E.I. Chazov
  Moscow, Russia Recruiting

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Pulmonary Embolism Registry from Emergency Care to Long-Term Follow-Up

  This registry follows adults with acute pulmonary embolism to see how care is given in the real world and what happens over time.

  Recruiting at 16 sites Azienda Ospedaliero-Universitaria Careggi · Bagno a Ripoli, Tuscany and 15 other locations · NCT07855679

• Nailfold Capillaroscopy in Pulmonary Hypertension

  This study tests whether nailfold capillary scans correlate with invasive lung blood pressure measurements and whether these patterns change with PH treatment.

  Recruiting University of Glasgow · Clydebank, West Dunbartonshire · NCT07768644

• How pulmonary endarterectomy affects confidence in managing chronic thromboembolic pulmonary hypertension

  This project will see if pulmonary endarterectomy helps people with chronic thromboembolic pulmonary hypertension feel more confident managing their condition.

  Recruiting Damascus University · Damascus, Rif-dimashq Governorate · NCT07272798

• Effects of stopping riociguat on heart function in patients with CTEPH

  This study is testing how stopping the medication riociguat affects heart function in patients with inoperable CTEPH who have had balloon pulmonary angioplasty.

  Recruiting at 3 sites Phase 3 Beijing Chao Yang Hospital · Beijing, China and 2 other locations · NCT06922240

• Switching from Sildenafil to Riociguat for CTEPH Patients

  This study is testing if switching from sildenafil to riociguat can help people with Chronic Thromboembolic Pulmonary Hypertension feel better after they’ve already had balloon pulmonary angioplasty.

  Recruiting Phase 4 Chinese University of Hong Kong · Hong Kong · NCT06715280

• Using AI to improve imaging for pulmonary embolism diagnosis

  This study is testing if using advanced imaging and artificial intelligence can help doctors diagnose and manage pulmonary embolism better for patients who might have it.

  Recruiting China-Japan Friendship Hospital · Beijing · NCT06526468

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.