Registry of patients with rare cancers in Korea
Registry Study on Rare Cancers in Korea
Yonsei University · NCT06746766
This study is collecting information from patients with rare cancers in Korea to see how they can take part in clinical research and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 500 (estimated) |
| Ages | 19 Years and up |
| Sex | All |
| Sponsor | Yonsei University (other) |
| Locations | 1 site (Seoul) |
| Trial ID | NCT06746766 on ClinicalTrials.gov |
What this trial studies
This observational study focuses on collecting data from patients diagnosed with rare cancers in Korea to assess their participation in clinical research. It gathers comprehensive clinical characteristics, survival information, and pathological data, including genomic information. The aim is to better understand the demographics and outcomes of patients with rare cancers, which may inform future research and treatment strategies.
Who should consider this trial
Good fit: Ideal candidates for this study are adults aged 19 years and older who have been diagnosed with a confirmed rare cancer and have a life expectancy of at least three months.
Not a fit: Patients with serious or unstable medical or psychiatric conditions may not benefit from this study.
Why it matters
Potential benefit: If successful, this study could enhance the understanding of rare cancers and improve patient outcomes through better-targeted research and treatment options.
How similar studies have performed: While this study is focused on rare cancers, similar registry studies have shown success in improving understanding and treatment of other rare conditions.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adults aged ≥19 years * Confirmed rare cancer * Life expectancy ≥3 months Exclusion Criteria: -Serious or unstable medical/psychiatric conditions
Where this trial is running
Seoul
- Severance Hospital — Seoul, South Korea (RECRUITING)
Study contacts
- Principal investigator: Hyo Song Kim, MD, Ph.D — Yonsei Cencer center
- Study coordinator: Hyo Song Kim, MD, Ph.D
- Email: hyosong77@yuhs.ac
- Phone: 82-2-2228-8124
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Rare Cancer