Registry of patients with rare cancers in Korea
Official title: Registry Study on Rare Cancers in Korea
Run by Yonsei University · NCT06746766 · Data updated 2026-11-12
This study is collecting information from patients with rare cancers in Korea to see how they can take part in clinical research and improve future treatments.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 19 Years and up |
| Sex | All |
| Enrollment | 500 (estimated) |
| Sponsor | Yonsei University Academic / other |
| Locations | 1 site (Seoul) |
| Status | Recruiting |
| Started | November 18, 2024 |
| Main results expected | December 1, 2027 |
| Study ends | December 1, 2027 |
| Registry record updated | April 30, 2026 |
| Trial ID | NCT06746766 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are adults aged 19 years and older who have been diagnosed with a confirmed rare cancer and have a life expectancy of at least three months.
✕Probably not a fit
Patients with serious or unstable medical or psychiatric conditions may not benefit from this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This observational study focuses on collecting data from patients diagnosed with rare cancers in Korea to assess their participation in clinical research. It gathers comprehensive clinical characteristics, survival information, and pathological data, including genomic information. The aim is to better understand the demographics and outcomes of patients with rare cancers, which may inform future research and treatment strategies.
Why it matters
Potential benefit: If successful, this study could enhance the understanding of rare cancers and improve patient outcomes through better-targeted research and treatment options.
How similar studies have gone: While this study is focused on rare cancers, similar registry studies have shown success in improving understanding and treatment of other rare conditions.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adults aged ≥19 years * Confirmed rare cancer * Life expectancy ≥3 months Exclusion Criteria: -Serious or unstable medical/psychiatric conditions
Where it's running
-
Severance Hospital
Seoul, South Korea Recruiting
Study contacts
- Principal investigator: Hyo Song Kim, MD, Ph.D — Yonsei Cencer center
- Study coordinator: Hyo Song Kim, MD, Ph.D
- Email: hyosong77@yuhs.ac
- Phone: 82-2-2228-8124
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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High-precision detection of leftover cancer using a liquid-biopsy platform (SHERLOCK)
This project will test whether sensitive blood and other fluid tests for circulating tumor DNA can find leftover cancer (minimal residual disease) in adults treated with curative intent for breast, lung, melanoma, gynecologic, or genitourinary cancers.
-
Using genome and RNA analysis to guide treatment for advanced rare cancers
This project will test whether using detailed tumor DNA, RNA and methylation analyses to guide treatment helps adults with advanced rare cancers respond better than standard care.
-
Vaccination with Dendritic Cells for Patients with Resected Stage IV Rare Cancers
This study is testing a new vaccine made from patients' own immune cells to see if it can help people who have had rare stage IV cancers feel better and stay healthy after surgery.
-
Investigating genetic reasons for unusual responses to cancer treatment
This study is trying to find out how genetic differences in cancer patients affect their responses to treatment, so doctors can tailor therapies to work better for each individual.
-
Collecting tumor samples to improve cancer treatment matching
This study is collecting tumor samples from patients with advanced cancer to see if analyzing their genes can help doctors find the best treatments for them.
-
AI-assisted Rare-Disease Diagnosis
A multicenter randomized test to see if an AI diagnostic tool can help doctors make faster, more accurate rare-disease diagnoses for patients with unresolved symptoms.
How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.