Registry for tracking Multiple Sclerosis
NARCOMS Global Multiple Sclerosis Registry: A Long-Term Study to Facilitate Research in Multiple Sclerosis
University of Texas Southwestern Medical Center · NCT01018537
This study is collecting health information from people with Multiple Sclerosis to help researchers learn more about the disease and improve treatments.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 50000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | University of Texas Southwestern Medical Center (other) |
| Locations | 1 site (Dallas, Texas) |
| Trial ID | NCT01018537 on ClinicalTrials.gov |
What this trial studies
The NARCOMS Registry collects health-related data from individuals diagnosed with Multiple Sclerosis (MS) to understand disease patterns and treatment outcomes over time. Participants complete an initial enrollment survey and update their information twice a year, either online or by mail. The registry is the largest of its kind, involving over 41,000 participants from the U.S., Canada, and beyond, and aims to provide valuable insights for MS research and drug approval processes. All data collected is confidential and used solely for research purposes.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals aged 18 and older who have been diagnosed with Multiple Sclerosis or clinically isolated syndrome.
Not a fit: Patients who do not have a diagnosis of Multiple Sclerosis or clinically isolated syndrome will not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of Multiple Sclerosis and improve treatment options for patients.
How similar studies have performed: Other patient registries have shown success in advancing research and treatment options for chronic diseases, indicating that this approach is both valuable and tested.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Any individual who has been diagnosed with multiple sclerosis or clinically isolated syndrome * Must be at least 18 years of age Exclusion Criteria: * None
Where this trial is running
Dallas, Texas
- UT Southwestern Medical Center — Dallas, Texas, United States (RECRUITING)
Study contacts
- Principal investigator: Amber Salter, Ph.D. — University of Texas Southwestern Medical Center
- Study coordinator: NARCOMS Team
- Email: MSregistry@narcoms.org
- Phone: 1-214-648-4583
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Multiple Sclerosis, NARCOMS, Patient Registry, Registry