Clinical trial Recruiting at 1 site Observational

Registry for rare ovarian and testicular stromal tumors

Official title: International Ovarian & Testicular Stromal Tumor Registry

Run by Children's Hospitals and Clinics of Minnesota · NCT01970696 · Data updated 2026-11-12

This study is gathering information about rare ovarian and testicular stromal tumors to learn more about their causes and find better treatment options for patients.

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Quick facts

Study typeObservational
SexAll
Enrollment500 (estimated)
SponsorChildren's Hospitals and Clinics of Minnesota
Academic / other
Drugs / interventionschemotherapy, radiation
Locations1 site (Minneapolis, Minnesota)
StatusRecruiting
StartedDecember 8, 2011
Main results expectedDecember 31, 2030
Study endsDecember 31, 2035
Registry record updatedOctober 23, 2026
Trial IDNCT01970696 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include individuals with a current or previous diagnosis of ovarian or testicular stromal tumors.

Probably not a fit

Patients with adult granulosa cell tumors or those unable to provide informed consent may not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This registry collects and analyzes clinical and biological data on ovarian and testicular stromal tumors to better understand their causes and treatment options. It gathers information through referrals from clinicians, families, and published case authors, focusing on factors such as clinical history, family history, imaging studies, and treatment outcomes. The registry also collects biological samples for genetic analysis, particularly looking at DICER1 mutations and miRNA expression, which may play a role in these tumors. The goal is to improve knowledge and treatment strategies for these rare cancers.

Why it matters

Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with rare ovarian and testicular stromal tumors.

How similar studies have gone: While this registry approach is novel for these specific tumors, similar registries have shown success in advancing understanding of rare cancers.

Who can join: the full rules

Show full inclusion / exclusion criteria
All patients with a suspected gonadal stromal tumor or a similar tumor. International enrollment is encouraged. Patients of any age are eligible, but based on epidemiology and referral patterns, most participants are expected to be under age 20.

Where it's running

  • Children's Minnesota
    Minneapolis, Minnesota, United States
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.