Registry for rare ovarian and testicular stromal tumors
Official title: International Ovarian & Testicular Stromal Tumor Registry
Run by Children's Hospitals and Clinics of Minnesota · NCT01970696 · Data updated 2026-11-12
This study is gathering information about rare ovarian and testicular stromal tumors to learn more about their causes and find better treatment options for patients.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 500 (estimated) |
| Sponsor | Children's Hospitals and Clinics of Minnesota Academic / other |
| Drugs / interventions | chemotherapy, radiation |
| Locations | 1 site (Minneapolis, Minnesota) |
| Status | Recruiting |
| Started | December 8, 2011 |
| Main results expected | December 31, 2030 |
| Study ends | December 31, 2035 |
| Registry record updated | October 23, 2026 |
| Trial ID | NCT01970696 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include individuals with a current or previous diagnosis of ovarian or testicular stromal tumors.
✕Probably not a fit
Patients with adult granulosa cell tumors or those unable to provide informed consent may not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This registry collects and analyzes clinical and biological data on ovarian and testicular stromal tumors to better understand their causes and treatment options. It gathers information through referrals from clinicians, families, and published case authors, focusing on factors such as clinical history, family history, imaging studies, and treatment outcomes. The registry also collects biological samples for genetic analysis, particularly looking at DICER1 mutations and miRNA expression, which may play a role in these tumors. The goal is to improve knowledge and treatment strategies for these rare cancers.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with rare ovarian and testicular stromal tumors.
How similar studies have gone: While this registry approach is novel for these specific tumors, similar registries have shown success in advancing understanding of rare cancers.
Who can join: the full rules
Show full inclusion / exclusion criteria
All patients with a suspected gonadal stromal tumor or a similar tumor. International enrollment is encouraged. Patients of any age are eligible, but based on epidemiology and referral patterns, most participants are expected to be under age 20.
Where it's running
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Children's Minnesota
Minneapolis, Minnesota, United States Recruiting
Study contacts
- Principal investigator: Kris Ann P Schultz, MD — Children's Minnesota
- Study coordinator: Paige HR Mallinger, MS
- Email: paige.mallinger@childrensmn.org
- Phone: 612-813-7121
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.