Registry for people living with Myasthenia Gravis

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to gather information about the experiences of individuals diagnosed with Myasthenia Gravis (MG) in the United States. It focuses on understanding the diagnosis timeline, common symptoms, treatment methods, and the overall impact of MG on daily life and healthcare access. Participants will complete an initial survey upon enrollment and will be invited to provide updates through follow-up surveys every six months. The study seeks to create a comprehensive registry that reflects the lived experiences of those affected by MG.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* age over 18
* positive MG diagnosis

Exclusion Criteria:

* age under 18
* misdiagnosed with MG

Where it's running

• Myasthenia Gravis Foundation of America
  Westborough, Massachusetts, United States Recruiting

Study contacts

• Principal investigator: Patient Registry PI — Yale University
• Study coordinator: National Director, Patient Registry
• Email: gmvalo@myasthenia.org
• Phone: 8005415454

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• MG patient registry to track long-term experiences and treatment patterns

  This registry collects information from adults with myasthenia gravis to see how symptoms and quality of life change over time and how treatments relate to those changes.

  Recruiting Autoimmune Neurology Alliance · Framingham, Massachusetts · NCT07761026

• Efgartigimod for hospitalized myasthenia gravis exacerbations or crisis

  This will try giving efgartigimod in the hospital to see if it helps adults with AChR‑positive generalized myasthenia gravis who are admitted for a severe worsening of symptoms.

  Recruiting Phase 4 University of Colorado, Denver · Aurora, Colorado · NCT06860633

• Evaluating NMD670 for treating Myasthenia Gravis in adults

  This study is testing if a new medication called NMD670 can help adults with Myasthenia Gravis feel better by comparing different doses to a placebo.

  Recruiting at 33 sites Phase 2 NMD Pharma A/S · Carlsbad, California and 39 other locations · NCT06414954

• Panorama: Neuromuscular Organoids to understand refractory AChR+ myasthenia gravis

  This study tests neuromuscular organoids built from stem cells to see if they reveal why some people with AChR-positive myasthenia gravis don’t respond to standard treatments.

  Recruiting Fondazione IRCCS Ca' Granda, Ospedale Maggiore Policlinico · Milan · NCT07717281

• Ublituximab maintenance after efgartigimod response in myasthenia gravis

  This study tests whether giving ublituximab as maintenance after a positive response to efgartigimod helps adults with myasthenia gravis.

  Recruiting at 7 sites Phase 2 TG Therapeutics, Inc. · Colorado Springs, Colorado and 6 other locations · NCT07673744

• Pregnant Women with Neuroimmune Diseases: A long-term follow-up study

  This study follows women with neuroimmune diseases and healthy controls through pregnancy and up to ten years to see how pregnancy affects disease activity and outcomes for both mother and baby.

  Recruiting Third Affiliated Hospital, Sun Yat-Sen University · Guangzhou, Guangdong · NCT07653984

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.