Registry for patients with myeloid diseases in Austria
Official title: Austrian Myeloid Registry
Run by Arbeitsgemeinschaft medikamentoese Tumortherapie · NCT04438889 · Data updated 2026-11-12
This study collects information from patients with myeloid diseases in Austria to help improve understanding and treatment of conditions like myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 3000 (estimated) |
| Sponsor | Arbeitsgemeinschaft medikamentoese Tumortherapie Academic / other |
| Locations | 16 sites (Feldkirch and 15 other locations) |
| Status | Recruiting |
| Started | July 13, 2020 |
| Main results expected | April 2029 |
| Study ends | April 2030 |
| Registry record updated | April 10, 2025 |
| Trial ID | NCT04438889 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this registry are individuals over 17 years old diagnosed with a myeloid disease as per WHO 2016 criteria.
✕Probably not a fit
Patients who are unable or unwilling to sign informed consent will not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The Austrian Myeloid Registry (aMYELOIDr) is a non-interventional observational study that collects data from patients diagnosed with myeloid diseases, including myelodysplastic syndromes (MDS), chronic myelomonocytic leukemia (CMML), and acute myeloid leukemia (AML). This multi-center registry gathers real-world data from various sites in Austria, with the potential for future expansion to other countries. Data is entered into an electronic case report form (eCRF) by clinical personnel and physicians, aiming to enhance understanding and management of these conditions.
Why it matters
Potential benefit: If successful, this registry could provide valuable insights into the management and treatment outcomes of myeloid diseases, ultimately improving patient care.
How similar studies have gone: Other observational registries have shown success in collecting valuable data for similar conditions, indicating that this approach is promising.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Age \>17 years * Diagnosis of myeloid disease according to WHO 2016 * Signed patient informed consent (IC) Exclusion Criteria: * Patient is unable or unwilling to sign IC
Where it's running
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LKH Feldkirch, Innere Medizin II, Interne E: Hämatologie und Onkologie
Feldkirch, Austria Recruiting -
KH der Barmherzigen Brüder, Innere Medizin I
Graz, Austria Recruiting -
Universitätsklinik Innsbruck, Univ.-Klinik für Innere Medizin V, Hämatologie und Onkologie
Innsbruck, Austria Recruiting -
Universitätsklinikum Krems, Innere Medizin II Hämato-Onkologie
Krems, Austria Recruiting -
LKH Hochsteiermark, Abteilung für Hämato-Onkologie
Leoben, Austria Recruiting -
Ordensklinikum Linz GmbH, Barmherzige Schwestern, Interne I: Internistische Onkologie, Hämatologie und Gastroenterologie
Linz, Austria Recruiting
Show 10 more locations
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Ordensklinikum Linz GmbH, Elisabethinen, I. Interne Abteilung Hämato-Onkologie
Linz, Austria Recruiting -
Kepler Universitätsklinikum Linz, Med. Campus III., Univ.-Klinik für Hämatologie und Internistische Onkologie
Linz, Austria Recruiting -
Universitätsklinik für Innere Med. III, PMU Salzburg
Salzburg, Austria Recruiting -
Universitätsklinikum St. Pölten, Klinische Abteilung für Innere Medizin 1
Sankt Pölten, Austria Recruiting -
Klinikum Steyr, Innere Medizin II
Steyr, Austria Recruiting -
Hanusch KH, 3. Med. Abteilung
Vienna, Austria Recruiting -
Klinik Ottakring, 1. Med. Abteilung
Vienna, Austria Recruiting -
Klinik Donaustadt: 2. Medizinische Abteilung
Vienna, Austria Recruiting -
Klinikum Wels-Grieskirchen, Abteilung für Innere Medizin IV
Wels, Austria Recruiting -
Medizinische Universität Graz, Universitätsklinik für Innere Medizin, Klinische Abteilung für Hämatologie
Graz, Austria Not yet recruiting
Study contacts
- Principal investigator: Lisa Pleyer, MD — 3rd Med Dept Paracelsus Medical University, Salzburg
- Study coordinator: Lisa Pleyer, MD
- Email: dr.lisa.pleyer@gmail.com
- Phone: +43676899758271
Similar studies
Other studies for the same condition or treatment. Recruiting studies are listed first.
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-
A registry for patients with lymphoma
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-
Registry for metastatic breast cancer in Austria
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.