Clinical trial Recruiting at 15 sites Observational Ages 18 and up

Registry for patients with myeloid diseases in Austria

Official title: Austrian Myeloid Registry

Run by Arbeitsgemeinschaft medikamentoese Tumortherapie · NCT04438889 · Data updated 2026-11-12

This study collects information from patients with myeloid diseases in Austria to help improve understanding and treatment of conditions like myelodysplastic syndromes, chronic myelomonocytic leukemia, and acute myeloid leukemia.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment3000 (estimated)
SponsorArbeitsgemeinschaft medikamentoese Tumortherapie
Academic / other
Locations16 sites (Feldkirch and 15 other locations)
StatusRecruiting
StartedJuly 13, 2020
Main results expectedApril 2029
Study endsApril 2030
Registry record updatedApril 10, 2025
Trial IDNCT04438889 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this registry are individuals over 17 years old diagnosed with a myeloid disease as per WHO 2016 criteria.

Probably not a fit

Patients who are unable or unwilling to sign informed consent will not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The Austrian Myeloid Registry (aMYELOIDr) is a non-interventional observational study that collects data from patients diagnosed with myeloid diseases, including myelodysplastic syndromes (MDS), chronic myelomonocytic leukemia (CMML), and acute myeloid leukemia (AML). This multi-center registry gathers real-world data from various sites in Austria, with the potential for future expansion to other countries. Data is entered into an electronic case report form (eCRF) by clinical personnel and physicians, aiming to enhance understanding and management of these conditions.

Why it matters

Potential benefit: If successful, this registry could provide valuable insights into the management and treatment outcomes of myeloid diseases, ultimately improving patient care.

How similar studies have gone: Other observational registries have shown success in collecting valuable data for similar conditions, indicating that this approach is promising.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Age \>17 years
* Diagnosis of myeloid disease according to WHO 2016
* Signed patient informed consent (IC)

Exclusion Criteria:

* Patient is unable or unwilling to sign IC

Where it's running

  • LKH Feldkirch, Innere Medizin II, Interne E: Hämatologie und Onkologie
    Feldkirch, Austria
    Recruiting
  • KH der Barmherzigen Brüder, Innere Medizin I
    Graz, Austria
    Recruiting
  • Universitätsklinik Innsbruck, Univ.-Klinik für Innere Medizin V, Hämatologie und Onkologie
    Innsbruck, Austria
    Recruiting
  • Universitätsklinikum Krems, Innere Medizin II Hämato-Onkologie
    Krems, Austria
    Recruiting
  • LKH Hochsteiermark, Abteilung für Hämato-Onkologie
    Leoben, Austria
    Recruiting
  • Ordensklinikum Linz GmbH, Barmherzige Schwestern, Interne I: Internistische Onkologie, Hämatologie und Gastroenterologie
    Linz, Austria
    Recruiting
Show 10 more locations
  • Ordensklinikum Linz GmbH, Elisabethinen, I. Interne Abteilung Hämato-Onkologie
    Linz, Austria
    Recruiting
  • Kepler Universitätsklinikum Linz, Med. Campus III., Univ.-Klinik für Hämatologie und Internistische Onkologie
    Linz, Austria
    Recruiting
  • Universitätsklinik für Innere Med. III, PMU Salzburg
    Salzburg, Austria
    Recruiting
  • Universitätsklinikum St. Pölten, Klinische Abteilung für Innere Medizin 1
    Sankt Pölten, Austria
    Recruiting
  • Klinikum Steyr, Innere Medizin II
    Steyr, Austria
    Recruiting
  • Hanusch KH, 3. Med. Abteilung
    Vienna, Austria
    Recruiting
  • Klinik Ottakring, 1. Med. Abteilung
    Vienna, Austria
    Recruiting
  • Klinik Donaustadt: 2. Medizinische Abteilung
    Vienna, Austria
    Recruiting
  • Klinikum Wels-Grieskirchen, Abteilung für Innere Medizin IV
    Wels, Austria
    Recruiting
  • Medizinische Universität Graz, Universitätsklinik für Innere Medizin, Klinische Abteilung für Hämatologie
    Graz, Austria
    Not yet recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

  • Registry for patients with advanced metastatic colorectal cancer

    This study is collecting information from patients with advanced colorectal cancer who have tried different treatments to see how well they are doing and to help improve future care.

    Recruiting at 7 sites Arbeitsgemeinschaft medikamentoese Tumortherapie · Linz and 6 other locations · NCT06678919

  • A registry for patients with lymphoma

    This study is collecting information from lymphoma patients to see how they are diagnosed, treated, and how they do over time, all while making sure their regular care isn't affected.

    Recruiting Arbeitsgemeinschaft medikamentoese Tumortherapie · Salzburg, State of Salzburg · NCT06294652

  • Registry for metastatic breast cancer in Austria

    This study is collecting information from people with metastatic breast cancer in Austria to better understand the disease and how different treatments are working.

    Recruiting at 16 sites Arbeitsgemeinschaft medikamentoese Tumortherapie · Salzburg, State of Salzburg and 15 other locations · NCT03870620

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.