Registry for patients with mastocytosis and hypertryptasemia
Genetic, Multiomic and Cytokine-based Mapping of Patients With Mastocytosis/Hypertryptasemia at the University Hospital of Zurich German: Mastozytose-Register: Datenerfassung Und Weiterverwendung Von Biologischem Material Von Patienten Mit Mastozytose, Welche am Universitätsspital Zürich Behandelt Werden
University of Zurich · NCT06466889
This study is collecting information and samples from patients with mastocytosis and high tryptase levels at the University Hospital of Zurich to better understand their conditions and improve treatment.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 400 (estimated) |
| Sex | All |
| Sponsor | University of Zurich (other) |
| Locations | 1 site (Zurich) |
| Trial ID | NCT06466889 on ClinicalTrials.gov |
What this trial studies
This observational study aims to compile data on patients diagnosed with mastocytosis and hypertryptasemia who are treated at the University Hospital of Zurich. It focuses on gathering demographic information, tracking clinical progress, and documenting treatment courses. Additionally, biological samples will be collected from routine diagnostics, including serum, skin tissue, gut mucosa, and bone marrow, for future experimental research. The goal is to enhance understanding of these conditions and improve patient management.
Who should consider this trial
Good fit: Ideal candidates for this study are adult patients diagnosed with mastocytosis or hypertryptasemia who are receiving treatment at the University Hospital of Zurich.
Not a fit: Patients who have denied consent to participate in the study will not benefit from this research.
Why it matters
Potential benefit: If successful, this registry could lead to better understanding and management of mastocytosis and hypertryptasemia, ultimately improving patient outcomes.
How similar studies have performed: While this registry approach is common, the specific focus on mastocytosis and hypertryptasemia may provide novel insights, as similar studies have shown success in other rare diseases.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Adult patients with mastocytsis/hypertryptasemia which are treated at the university hospital of Zurich * available informed consent Exclusion Criteria: * denied consent
Where this trial is running
Zurich
- University Hospital of Zurich — Zurich, Switzerland (RECRUITING)
Study contacts
- Study coordinator: Claudia Lang, MD
- Email: claudia.lang@usz.ch
- Phone: +41442551111
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Mastocytosis, Hypertryptasemia, mast cell disease