Registry for patients with mastocytosis and hypertryptasemia

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to compile data on patients diagnosed with mastocytosis and hypertryptasemia who are treated at the University Hospital of Zurich. It focuses on gathering demographic information, tracking clinical progress, and documenting treatment courses. Additionally, biological samples will be collected from routine diagnostics, including serum, skin tissue, gut mucosa, and bone marrow, for future experimental research. The goal is to enhance understanding of these conditions and improve patient management.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Adult patients with mastocytsis/hypertryptasemia which are treated at the university hospital of Zurich
* available informed consent

Exclusion Criteria:

* denied consent

Where it's running

• University Hospital of Zurich
  Zurich, Switzerland Recruiting

Study contacts

• Study coordinator: Claudia Lang, MD
• Email: claudia.lang@usz.ch
• Phone: +41442551111

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

• Different forms of IgE in health and disease.

  We will test whether different forms of IgE in the blood differ between healthy adults and people with allergies, chronic spontaneous urticaria, recent anaphylaxis, mastocytosis, hereditary alpha tryptasemia, X‑linked agammaglobulinemia, or those undergoing venom/medication desensitization.

  Recruiting KU Leuven · Leuven, Vlaams-Brabant · NCT07328178

• Registry for Rare Diseases

  This study is creating a detailed registry to collect information on rare diseases like amyloidosis and sarcoidosis to help improve how they are diagnosed and treated.

  Recruiting Hospital Italiano de Buenos Aires · Buenos Aires, Buenos Aires · NCT06573723

• Exploring the role of sclerostin in bone disease related to mastocytosis

  This study is trying to see how levels of a protein called sclerostin affect bone health in adults with mastocytosis compared to healthy volunteers.

  Recruiting Medical University of Lublin · Lublin, Lublin Voivodeship · NCT06440148

• Angioedema biomarker tests to help diagnose recurrent swelling

  This study tests multiple blood-based diagnostic tests to see if they can better identify the cause of recurrent angioedema in patients compared with current tests.

  Recruiting Foundation For Rare Disease Research · Wheaton, Maryland · NCT06210698

• Registry for patients with myeloproliferative neoplasms

  This study is creating a database to gather information from people with myeloproliferative neoplasms to help improve treatments and outcomes for these rare blood cancers.

  Recruiting University Health Network, Toronto · Toronto, Ontario · NCT02760238

• Examining factors that affect mast cell growth in mastocytosis

  This study is trying to understand what causes mast cells to grow too much in people with mastocytosis, so we can find better treatments for them.

  Recruiting National Institutes of Health Clinical Center (CC) · Bethesda, Maryland · NCT00044122

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.