Registry for patients with lymphatic diseases and lymphedema
The International Lymphatic Disease and Lymphedema Patient Registry and Biorepository
Stanford University · NCT01336790
This study is setting up a registry to gather health information from people with lymphedema and related conditions to help researchers find better treatments and possibly a cure.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 5000 (estimated) |
| Sex | All |
| Sponsor | Stanford University (other) |
| Locations | 1 site (Stanford, California) |
| Trial ID | NCT01336790 on ClinicalTrials.gov |
What this trial studies
This project establishes an International Patient Registry for Lymphatic Diseases to collect health information on lymphedema and related disorders. It aims to study disease classification, natural history, and treatment outcomes through collaboration with the Lymphatic Education & Research Network. The registry will provide essential clinical data for researchers to develop improved treatments and potentially find a cure for these conditions. Future plans include linking the registry with a biorepository for tissue and blood samples to enhance research capabilities.
Who should consider this trial
Good fit: Ideal candidates for this registry are individuals diagnosed with any form of lymphatic disease.
Not a fit: Patients without a diagnosis of lymphatic disease will not benefit from participation in this registry.
Why it matters
Potential benefit: If successful, this registry could lead to improved treatments and a better understanding of lymphatic diseases for patients.
How similar studies have performed: Other studies have shown success with similar patient registries, indicating a promising approach to understanding and treating lymphatic diseases.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Presence of lymphatic disease Exclusion Criteria: * None
Where this trial is running
Stanford, California
- Stanford University School of Medicine — Stanford, California, United States (RECRUITING)
Study contacts
- Principal investigator: Stanley G Rockson — Stanford University
- Study coordinator: Stanley Rockson, MD
- Phone: (650) 7231396
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Lymphedema, Lymphatic disease, Lymphangiomatosis, Lymphangiectasia, Protein-losing enteropathy, Vascular Anomalies