Registry for patients with lipodystrophy

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This registry aims to monitor the progression of lipodystrophy, a rare disease, by consolidating patient data across multiple locations. The European Consortium of Lipodystrophies (ECLip) has developed a web-based platform to facilitate data collection while ensuring data protection and sovereignty. Medical centers worldwide can participate by entering patient data after obtaining necessary permissions and consent. The registry will help improve research conditions and provide reliable information on the incidence and health status of lipodystrophy patients.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* lipodystrophy

Exclusion Criteria:

* lipodystrophy due to anti-retroviral drugs

Where it's running

• Medical University of Vienna
  Vienna, Austria Recruiting
• Lille University
  Lille, France Recruiting
• AP-HP Nord Université de Paris, Hôpital Universitaire Robert-Debré
  Paris, France Recruiting
• Pierre et Marie Curie School of Medicine, Sorbonne University
  Paris, France Recruiting
• Kinder-und Jugendkrankenhaus AUF DER BULT
  Hanover, Germany Recruiting
• Department of Internal Medicine (Endocrinology and Nephrology), University of Leipzig
  Leipzig, Germany Recruiting

Study contacts

• Principal investigator: David Araujo-Vilar, Prof. Dr. — Santiago de Compostela University
• Study coordinator: Julia von Schnurbein, Dr.
• Email: julia.schnurbein@uniklinik-ulm.de
• Phone: 0049 731 500

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.