Registry for patients with Inflammatory Bowel Disease
Official title: University of Pittsburgh Medical Center (UPMC) Center for Inflammatory Bowel Disease (IBD) Research Registry
Run by University of Pittsburgh · NCT04243525 · Data updated 2026-11-12
This study is creating a registry to gather information from people with Inflammatory Bowel Disease to help researchers learn more about the condition and find better treatments.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 5000 (estimated) |
| Sponsor | University of Pittsburgh Academic / other |
| Locations | 1 site (Pittsburgh, Pennsylvania) |
| Status | Recruiting |
| Started | May 2009 |
| Main results expected | May 2030 |
| Study ends | May 2030 |
| Registry record updated | August 12, 2026 |
| Trial ID | NCT04243525 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates are adults aged 18 and above seeking care for Inflammatory Bowel Disease at the Center.
✕Probably not a fit
Patients who are under 18 or not seeking care for IBD will not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This registry collects identifiable medical record information from patients with Inflammatory Bowel Disease (IBD) at the Center for Inflammatory Bowel Disease. Patients provide informed consent to include their data in the registry, which will facilitate retrospective research studies and help identify eligible subjects for future research. The goal is to better classify IBD and understand its natural course, potentially leading to improved therapies and preventive measures.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of IBD and lead to better treatment options for patients.
How similar studies have gone: Other registries focused on chronic diseases have shown success in improving understanding and treatment options, indicating potential for this approach.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: All patients age 18 and above seeking medical care at the Center for Inflammatory Bowel Diseases Clinic at UPMC Exclusion Criteria: N/A
Where it's running
-
University of Pittsburgh Medical Center
Pittsburgh, Pennsylvania, United States Recruiting
Study contacts
- Principal investigator: David Binion, MD — University of Pittsburgh
- Study coordinator: Claudia Ramos Rivers, MD
- Email: cmr95@pitt.edu
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.