Registry for Patients with Castleman Disease

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This registry collects clinical, laboratory, and patient survey data from individuals diagnosed with Castleman disease to enhance understanding, diagnosis, and treatment of the condition. Supported by the Castleman Disease Collaborative Network, the registry aims to gather real-world data from 1000 patients globally, focusing on demographic, clinical, and treatment information. The data collected will facilitate future research studies and improve collaboration among patients, healthcare providers, and researchers.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Person of any age
* Have a reference pathology report suggesting "Castleman disease" not limited to cutaneous involvement only that can be uploaded
* Be able to provide electronic informed consent, as per local regulations
* Deceased patients may also be enrolled when a reference pathology report suggesting "Castleman disease" can be supplied or when the ART is able to locate and upload such a pathology report.

Exclusion Criteria:

* Because this registry is designed to provide as wide a picture of routine clinical practice as possible, inclusion criteria are set deliberately wide and there are no exclusion criteria.

Where it's running

• University of Pennsylvania
  Philadelphia, Pennsylvania, United States Recruiting

Study contacts

• Principal investigator: Joshua Brandstadter, MD, PhD, MSc — University of Pennsylvania
• Study coordinator: Joshua Brandstadter, MD, PhD, MSc
• Email: joshua.brandstadter@pennmedicine.upenn.edu
• Phone: 267-847-8220

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

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• Exploring genetic factors in viral-associated tumors and immune disorders

  This study is trying to find out how genetic factors in tumors linked to viral infections affect people with HIV, immune disorders, or Castleman disease, to help improve diagnosis and treatment.

  Recruiting National Institutes of Health Clinical Center (CC) · Bethesda, Maryland · NCT03300830

How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.