Registry for Neuroendocrine Tumours in Switzerland
SwissNET - a Prospective Registry of Patients With Neuroendocrine Tumours in Switzerland
Insel Gruppe AG, University Hospital Bern · NCT01039922
This study is collecting health information from patients with rare gastroentero-pancreatic neuroendocrine tumors in Switzerland to see how different treatments work and improve care for these patients.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 1245 (estimated) |
| Sex | All |
| Sponsor | Insel Gruppe AG, University Hospital Bern (other) |
| Locations | 55 sites (Aarau and 54 other locations) |
| Trial ID | NCT01039922 on ClinicalTrials.gov |
What this trial studies
This registry aims to systematically collect clinical information from patients diagnosed with gastroentero-pancreatic neuroendocrine tumors (GEP-NETs) in Switzerland. By gathering data from various hospitals and general practitioners, the study seeks to improve understanding of GEP-NETs, which are rare and often challenging to manage due to limited treatment options. The data will be anonymized and entered into a specially designed database, allowing for the evaluation of treatment strategies and patient outcomes over time. The initiative is crucial for addressing the current gaps in knowledge and variability in treatment approaches across the country.
Who should consider this trial
Good fit: Ideal candidates for this registry are patients diagnosed with neuroendocrine tumors in Switzerland who can provide informed consent.
Not a fit: Patients with neuroendocrine tumors diagnosed outside of Switzerland or those who cannot provide informed consent may not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could lead to improved treatment strategies and outcomes for patients with neuroendocrine tumors.
How similar studies have performed: Other registries focusing on rare tumors have shown success in improving patient outcomes and treatment strategies, indicating that this approach is promising.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Neuroendocrine tumor irrespective of primary tumor location * Diagnosis in Switzerland * Given informed consent
Where this trial is running
Aarau and 54 other locations
- Kantonsspital Aarau — Aarau, Switzerland (RECRUITING)
- Spitalnetz Bern Aarberg — Aarberg, Switzerland (RECRUITING)
- Bezirksspital Affoltern — Affoltern am Albis, Switzerland (RECRUITING)
- Kantonsspital Uri, Altdorf — Altdorf, Switzerland (RECRUITING)
- St. Claraspital — Basel, Switzerland (RECRUITING)
- Universitätsspital Basel — Basel, Switzerland (RECRUITING)
- Istituto oncologico della Svizzera italiana — Bellinzona, Switzerland (RECRUITING)
- Div. of Endocrinology, Diabetes and Clinical Nutrition, Bern University Hospital — Bern, Switzerland (RECRUITING)
- Spital Tiefenau, Spitalnetz Bern — Bern, Switzerland (RECRUITING)
- Zieglerspital Bern — Bern, Switzerland (RECRUITING)
- Spitalzentrum Biel - Bienne — Biel, Switzerland (RECRUITING)
- Kantonsspital Bruderholz — Bruderholz, Switzerland (RECRUITING)
- Regionsspital Emmental — Burgdorf, Switzerland (RECRUITING)
- Kantonsspital Chur — Chur, Switzerland (RECRUITING)
- Private practise Dr. Mannhart — Churwalden, Switzerland (RECRUITING)
- Hôpital du Jura — Delémont, Switzerland (RECRUITING)
- Spital Dornach — Dornach, Switzerland (RECRUITING)
- Regionalspital Einsiedeln — Einsiedeln, Switzerland (RECRUITING)
- Hôpitaux Universitaires de Genève — Geneva, Switzerland (RECRUITING)
- Spital Grabs — Grabs, Switzerland (RECRUITING)
- See-Spital Horgen — Horgen, Switzerland (RECRUITING)
- Spital Zimmerberg — Horgen, Switzerland (RECRUITING)
- Fmi Spital Interlaken — Interlaken, Switzerland (RECRUITING)
- Spital Lachen — Lachen, Switzerland (RECRUITING)
- Spital Region Oberaargau — Langenthal, Switzerland (RECRUITING)
- Kantonsspital Laufen — Laufen, Switzerland (RECRUITING)
- Centre hospitalier universitaire vaudois, CHUV — Lausanne, Switzerland (RECRUITING)
- Kantonsspital Liestal — Liestal, Switzerland (RECRUITING)
- Hirslandenklinik St. Anna — Lucerne, Switzerland (RECRUITING)
- Kantonsspital Luzern — Lucerne, Switzerland (RECRUITING)
- Kantonsspital Sursee, Luzern — Lucerne, Switzerland (RECRUITING)
- Kreisspital Männedorf — Männedorf, Switzerland (RECRUITING)
- Kantonsspital Münsterlingen — Münsterlingen, Switzerland (RECRUITING)
- Kantonsspital Olten — Olten, Switzerland (RECRUITING)
- Gesundheitszentrum Fricktal — Rheinfelden, Switzerland (RECRUITING)
- Kantonsspital St. Gallen — Sankt Gallen, Switzerland (RECRUITING)
- Kantonsspital Obwalden — Sarnen, Switzerland (RECRUITING)
- Spital Limmattal — Schlieren, Switzerland (RECRUITING)
- Spital Schwyz — Schwyz, Switzerland (RECRUITING)
- Privatpraxis Dr. H.J. Poths — Seuzach Dorf, Switzerland (RECRUITING)
- Centre hospitalier du centre du Valais — Sion, Switzerland (RECRUITING)
- Bürgerspital Solothurn — Solothurn, Switzerland (RECRUITING)
- Kantonsspital Nidwalden — Stans, Switzerland (RECRUITING)
- Thun Spital STS AG — Thun, Switzerland (RECRUITING)
- Spital Uster — Uster, Switzerland (RECRUITING)
- Regionalspital Visp — Visp, Switzerland (RECRUITING)
- Kantonsspital Winterthur — Winterthur, Switzerland (RECRUITING)
- Kantonsspital Wolhusen — Wolhusen, Switzerland (RECRUITING)
- Spital Zollikerberg — Zollikerberg, Switzerland (RECRUITING)
- Zuger Kantonsspital AG — Zug, Switzerland (RECRUITING)
+5 more sites — see ClinicalTrials.gov for the full list.
Study contacts
- Study coordinator: Alexander Siebenhuener, MD
- Email: Alexander.Siebenhuener@usz.ch
- Phone: ++41 44 255 2214
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Neuroendocrine Tumors, Carcinoid Tumor, Registries