Clinical trial Recruiting at 1 site Observational

Registry for individuals with type 1 diabetes

Official title: The T1D Exchange Registry

Run by T1D Exchange, United States · NCT04629586 · Data updated 2026-11-12

This study is collecting information from people with type 1 diabetes to help researchers understand the condition better and improve diabetes management.

Quick facts

Study typeObservational
SexAll
Enrollment50000 (estimated)
SponsorT1D Exchange, United States
Academic / other
Locations1 site (Boston, Massachusetts)
StatusRecruiting
StartedDecember 13, 2018
Main results expectedDecember 31, 2030
Study endsDecember 31, 2030
Registry record updatedMay 8, 2023
Trial IDNCT04629586 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include individuals diagnosed with type 1 diabetes who are living in the United States and can read and understand English.

Probably not a fit

Patients who do not use insulin or have had a pancreatic or islet cell transplant may not benefit from this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

The T1D Exchange Registry is an observational research initiative aimed at individuals with type 1 diabetes and their supporters. Participants voluntarily provide their data through annual surveys and have the option to engage in additional studies related to type 1 diabetes management. The study collects demographic and diabetes management information, which is updated annually, allowing for a comprehensive understanding of the condition over time. This registry serves as a valuable resource for future research and insights into type 1 diabetes.

Why it matters

Potential benefit: If successful, this registry could enhance understanding of type 1 diabetes and improve management strategies for patients.

How similar studies have gone: Other registries and observational studies have shown success in gathering valuable data for type 1 diabetes, making this approach well-established.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* Clinical diagnosis of type 1 diabetes.
* Individuals younger than 18 years of age must have parent/guardian consent.
* Must be able to read and understand English.
* Currently living in the United States

Exclusion criteria:

* Does not use insulin and has not had a pancreatic or islet cell transplant.
* Cannot fully read and understand English.
* Does not currently live in the United States.

Where it's running

  • T1D Exchange
    Boston, Massachusetts, United States
    Recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.