Registry for individuals with type 1 diabetes
Official title: The T1D Exchange Registry
Run by T1D Exchange, United States · NCT04629586 · Data updated 2026-11-12
This study is collecting information from people with type 1 diabetes to help researchers understand the condition better and improve diabetes management.
Quick facts
| Study type | Observational |
|---|---|
| Sex | All |
| Enrollment | 50000 (estimated) |
| Sponsor | T1D Exchange, United States Academic / other |
| Locations | 1 site (Boston, Massachusetts) |
| Status | Recruiting |
| Started | December 13, 2018 |
| Main results expected | December 31, 2030 |
| Study ends | December 31, 2030 |
| Registry record updated | May 8, 2023 |
| Trial ID | NCT04629586 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include individuals diagnosed with type 1 diabetes who are living in the United States and can read and understand English.
✕Probably not a fit
Patients who do not use insulin or have had a pancreatic or islet cell transplant may not benefit from this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
The T1D Exchange Registry is an observational research initiative aimed at individuals with type 1 diabetes and their supporters. Participants voluntarily provide their data through annual surveys and have the option to engage in additional studies related to type 1 diabetes management. The study collects demographic and diabetes management information, which is updated annually, allowing for a comprehensive understanding of the condition over time. This registry serves as a valuable resource for future research and insights into type 1 diabetes.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of type 1 diabetes and improve management strategies for patients.
How similar studies have gone: Other registries and observational studies have shown success in gathering valuable data for type 1 diabetes, making this approach well-established.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * Clinical diagnosis of type 1 diabetes. * Individuals younger than 18 years of age must have parent/guardian consent. * Must be able to read and understand English. * Currently living in the United States Exclusion criteria: * Does not use insulin and has not had a pancreatic or islet cell transplant. * Cannot fully read and understand English. * Does not currently live in the United States.
Where it's running
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T1D Exchange
Boston, Massachusetts, United States Recruiting
Study contacts
- Study coordinator: Kelsie LaFerrier
- Email: klaferriere@t1dexchange.org
- Phone: (617) 892-9941
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.