Registry for individuals with type 1 diabetes
The T1D Exchange Registry
This study is collecting information from people with type 1 diabetes to help researchers understand the condition better and improve diabetes management.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 50000 (estimated) |
| Sex | All |
| Sponsor | T1D Exchange, United States Academic / other |
| Locations | 1 site (Boston, Massachusetts) |
| Trial ID | NCT04629586 on ClinicalTrials.gov |
What this trial studies
The T1D Exchange Registry is an observational research initiative aimed at individuals with type 1 diabetes and their supporters. Participants voluntarily provide their data through annual surveys and have the option to engage in additional studies related to type 1 diabetes management. The study collects demographic and diabetes management information, which is updated annually, allowing for a comprehensive understanding of the condition over time. This registry serves as a valuable resource for future research and insights into type 1 diabetes.
Who should consider this trial
Good fit: Ideal candidates include individuals diagnosed with type 1 diabetes who are living in the United States and can read and understand English.
Not a fit: Patients who do not use insulin or have had a pancreatic or islet cell transplant may not benefit from this registry.
Why it matters
Potential benefit: If successful, this registry could enhance understanding of type 1 diabetes and improve management strategies for patients.
How similar studies have performed: Other registries and observational studies have shown success in gathering valuable data for type 1 diabetes, making this approach well-established.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Clinical diagnosis of type 1 diabetes. * Individuals younger than 18 years of age must have parent/guardian consent. * Must be able to read and understand English. * Currently living in the United States Exclusion criteria: * Does not use insulin and has not had a pancreatic or islet cell transplant. * Cannot fully read and understand English. * Does not currently live in the United States.
Where this trial is running
Boston, Massachusetts
- T1D Exchange — Boston, Massachusetts, United States (Recruiting)
Study contacts
- Study coordinator: Kelsie LaFerrier
- Email: klaferriere@t1dexchange.org
- Phone: (617) 892-9941
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.