Registry for individuals with personal or family history of pancreatic cancer
National Familial Pancreas Tumor Registry
This study is trying to find out the genetic and non-genetic reasons behind pancreatic cancer in families that have a history of the disease.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 12000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Johns Hopkins University Academic / other |
| Locations | 1 site (Baltimore, Maryland) |
| Trial ID | NCT02886247 on ClinicalTrials.gov |
What this trial studies
This observational registry aims to investigate the genetic and non-genetic causes of pancreatic cancer, focusing on families with a history of the disease. Established in 1994, the study seeks to identify genes that contribute to the clustering of pancreatic cancer cases within families. By analyzing data from participants with personal or familial histories of pancreatic tumors, researchers hope to uncover new familial pancreatic cancer genes and better understand the hereditary aspects of this condition.
Who should consider this trial
Good fit: Ideal candidates include individuals with a personal or family history of pancreatic tumors.
Not a fit: Patients without any personal or family history of pancreatic cancer may not receive benefit from this study.
Why it matters
Potential benefit: If successful, this research could lead to improved genetic understanding and risk assessment for pancreatic cancer, benefiting at-risk individuals.
How similar studies have performed: Other studies have successfully identified genetic factors associated with familial pancreatic cancer, suggesting that this approach has potential for meaningful discoveries.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * personal or family history of pancreas tumors Exclusion Criteria: * none
Where this trial is running
Baltimore, Maryland
- Johns Hopkins Hospital — Baltimore, Maryland, United States (Recruiting)
Study contacts
- Principal investigator: Alison Klein, PhD, MHS — Johns Hopkins University
- Study coordinator: Alison Klein, PhD, MHS
- Email: pancreas@jhmi.edu
- Phone: 410-955-3502
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.