Registry for aggressive pituitary tumors
A Research Registry on Aggressive PitNETs
Hospices Civils de Lyon · NCT05974696
This study is collecting information on aggressive pituitary tumors to help doctors better understand and manage these cases for patients.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 200 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | Hospices Civils de Lyon (other) |
| Locations | 1 site (Lyon) |
| Trial ID | NCT05974696 on ClinicalTrials.gov |
What this trial studies
This registry aims to collect and analyze data on aggressive pituitary tumors to identify potential biomarkers and improve patient management. It involves a multidisciplinary consultation meeting organized by a reference center for rare diseases in France, which gathers national experts to discuss patient cases. The registry has already reviewed over 80 patient files, making it one of the largest cohorts for aggressive pituitary tumors both nationally and internationally. The collected data will facilitate research efforts that were previously limited to clinical management.
Who should consider this trial
Good fit: Ideal candidates include patients diagnosed with a pituitary tumor whose cases have been presented at the national HYPOcare multidisciplinary consultation.
Not a fit: Patients who object to participating in this research will not benefit from the findings of this registry.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with aggressive pituitary tumors.
How similar studies have performed: While this approach is unique in its focus on aggressive pituitary tumors, similar registries have shown success in advancing research in rare diseases.
Eligibility criteria
Show full inclusion / exclusion criteria
* Inclusion Criteria : * Patients with a diagnosis of pituitary tumour * Patients whose file has been presented to the national HYPOcare RCP * Exclusion Criteria : * Patients objecting to participating in this research
Where this trial is running
Lyon
- Hospices Civils de Lyon - Groupement Hospitalier Est — Lyon, France (RECRUITING)
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Endocrine Tumor, Reference centre, rare diseases, transcriptoms