Registry for aggressive pituitary tumors
Official title: A Research Registry on Aggressive PitNETs
Run by Hospices Civils de Lyon · NCT05974696 · Data updated 2026-11-12
This study is collecting information on aggressive pituitary tumors to help doctors better understand and manage these cases for patients.
Quick facts
| Study type | Observational |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 200 (estimated) |
| Sponsor | Hospices Civils de Lyon Academic / other |
| Locations | 1 site (Lyon) |
| Status | Recruiting |
| Started | June 15, 2023 |
| Main results expected | June 15, 2029 |
| Study ends | June 15, 2029 |
| Registry record updated | August 8, 2023 |
| Trial ID | NCT05974696 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates include patients diagnosed with a pituitary tumor whose cases have been presented at the national HYPOcare multidisciplinary consultation.
✕Probably not a fit
Patients who object to participating in this research will not benefit from the findings of this registry.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This registry aims to collect and analyze data on aggressive pituitary tumors to identify potential biomarkers and improve patient management. It involves a multidisciplinary consultation meeting organized by a reference center for rare diseases in France, which gathers national experts to discuss patient cases. The registry has already reviewed over 80 patient files, making it one of the largest cohorts for aggressive pituitary tumors both nationally and internationally. The collected data will facilitate research efforts that were previously limited to clinical management.
Why it matters
Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with aggressive pituitary tumors.
How similar studies have gone: While this approach is unique in its focus on aggressive pituitary tumors, similar registries have shown success in advancing research in rare diseases.
Who can join: the full rules
Show full inclusion / exclusion criteria
* Inclusion Criteria : * Patients with a diagnosis of pituitary tumour * Patients whose file has been presented to the national HYPOcare RCP * Exclusion Criteria : * Patients objecting to participating in this research
Where it's running
-
Hospices Civils de Lyon - Groupement Hospitalier Est
Lyon, France Recruiting
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.