Clinical trial Recruiting at 1 site Observational Ages 18 and up

Registry for aggressive pituitary tumors

Official title: A Research Registry on Aggressive PitNETs

Run by Hospices Civils de Lyon · NCT05974696 · Data updated 2026-11-12

This study is collecting information on aggressive pituitary tumors to help doctors better understand and manage these cases for patients.

Quick facts

Study typeObservational
Ages18 Years and up
SexAll
Enrollment200 (estimated)
SponsorHospices Civils de Lyon
Academic / other
Locations1 site (Lyon)
StatusRecruiting
StartedJune 15, 2023
Main results expectedJune 15, 2029
Study endsJune 15, 2029
Registry record updatedAugust 8, 2023
Trial IDNCT05974696 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates include patients diagnosed with a pituitary tumor whose cases have been presented at the national HYPOcare multidisciplinary consultation.

Probably not a fit

Patients who object to participating in this research will not benefit from the findings of this registry.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This registry aims to collect and analyze data on aggressive pituitary tumors to identify potential biomarkers and improve patient management. It involves a multidisciplinary consultation meeting organized by a reference center for rare diseases in France, which gathers national experts to discuss patient cases. The registry has already reviewed over 80 patient files, making it one of the largest cohorts for aggressive pituitary tumors both nationally and internationally. The collected data will facilitate research efforts that were previously limited to clinical management.

Why it matters

Potential benefit: If successful, this registry could lead to improved understanding and treatment options for patients with aggressive pituitary tumors.

How similar studies have gone: While this approach is unique in its focus on aggressive pituitary tumors, similar registries have shown success in advancing research in rare diseases.

Who can join: the full rules

Show full inclusion / exclusion criteria
* Inclusion Criteria :

  * Patients with a diagnosis of pituitary tumour
  * Patients whose file has been presented to the national HYPOcare RCP
* Exclusion Criteria :

  * Patients objecting to participating in this research

Where it's running

  • Hospices Civils de Lyon - Groupement Hospitalier Est
    Lyon, France
    Recruiting

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.