Recording personal stories of patients and caregivers
MyPaTH Story Booth
This study is collecting personal stories from patients and caregivers to better understand their experiences with illness and healthcare.
Quick facts
| Study type | Observational |
|---|---|
| Enrollment | 2000 (estimated) |
| Ages | 18 Years to 99 Years |
| Sex | All |
| Sponsor | University of Pittsburgh Academic / other |
| Locations | 1 site (Pittsburgh, Pennsylvania) |
| Trial ID | NCT03494075 on ClinicalTrials.gov |
What this trial studies
The MyPaTH Story Booth aims to gather in-depth experiential knowledge from patients and caregivers by recording their personal narratives. Modeled after successful projects like Storycorps, this initiative will allow participants to share their stories in a structured audio format, providing valuable insights into their experiences with illness and healthcare. The narratives will be tagged with basic demographic information to create a searchable database, which can be utilized by researchers to enhance understanding of patient perspectives, especially among marginalized groups. The project will be implemented at various PaTH sites to build an archive of these important stories.
Who should consider this trial
Good fit: Ideal candidates for this project are individuals over the age of 18 who are willing to share their personal health-related stories.
Not a fit: Patients who are under 18 or unable to provide informed consent will not benefit from this project.
Why it matters
Potential benefit: If successful, this initiative could enhance understanding of patient experiences and improve healthcare delivery by highlighting areas needing attention.
How similar studies have performed: Similar narrative medicine approaches have shown promise in enhancing patient care and understanding, suggesting this project could be beneficial.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * Over the age of 18 Exclusion Criteria: * Researchers will exclude individuals who are not 18 years of age or older and/or do not provide informed consent
Where this trial is running
Pittsburgh, Pennsylvania
- University of Pittsburgh — Pittsburgh, Pennsylvania, United States (Recruiting)
Study contacts
- Principal investigator: Kathleen M McTigue, MD — University of Pittsburgh
- Study coordinator: Emily L Klawsson, MS
- Email: EKK15@pitt.edu
- Phone: 412-586-9796
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.