Quality of life assessment for patients with neuroendocrine tumors
Official title: Patient-reported Outcomes in Neuroendocrine Neoplasms: a Prospective Quality of Life and Quality of Care Study Within NETwerk
Run by University Hospital, Antwerp · NCT05268783 · Data updated 2026-11-12
This study is trying to see how living with neuroendocrine tumors affects patients' quality of life so that doctors can improve their care.
Quick facts
| Study type | Interventional |
|---|---|
| Ages | 18 Years and up |
| Sex | All |
| Enrollment | 1000 (estimated) |
| Sponsor | University Hospital, Antwerp Academic / other |
| Locations | 7 sites (Brasschaat, Antwerp and 6 other locations) |
| Status | Recruiting |
| Started | November 5, 2018 |
| Main results expected | December 31, 2029 |
| Study ends | December 31, 2029 |
| Registry record updated | March 24, 2022 |
| Trial ID | NCT05268783 on ClinicalTrials.gov |
Is this trial a fit for you?
✓Likely a good fit
Ideal candidates for this study are adults aged 18 and older who have been diagnosed with or are suspected to have a neuroendocrine tumor.
✕Probably not a fit
Patients without an email address will not be able to participate in this study.
A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.
What this trial studies
This study focuses on evaluating the quality of life for patients diagnosed with neuroendocrine tumors (NET) within a collaborative network of hospitals known as NETwerk. By utilizing standardized questionnaires, patients will provide feedback on their experiences throughout the diagnosis, treatment, and follow-up processes. The goal is to enhance the quality of care provided to these patients by identifying areas for improvement based on their reported outcomes. The participating hospitals include University Hospital Antwerp and several others in the Antwerp region.
Why it matters
Potential benefit: If successful, this study could lead to improved care strategies and better quality of life for patients with neuroendocrine tumors.
How similar studies have gone: Other studies focusing on patient-reported outcomes in cancer care have shown success in improving treatment approaches and patient satisfaction.
Who can join: the full rules
Show full inclusion / exclusion criteria
Inclusion Criteria: * NEN patient * 18 years or older * Patient should appear in Oncobase Exclusion Criteria: * Patients who do not have an email address
Where it's running
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AZ Klina
Brasschaat, Antwerp, Belgium Recruiting -
Antwerp University Hospital
Edegem, Antwerp, Belgium Recruiting -
AZ Rivierenland
Rumst, Antwerp, Belgium Recruiting -
Vitaz
Sint-Niklaas, East-Flanders, Belgium Recruiting -
Zna
Antwerp, Belgium Recruiting -
Gza
Antwerp, Belgium Recruiting
Show 1 more location
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AZ Monica
Deurne, Antwerp, Belgium Not yet recruiting
Study contacts
- Study coordinator: Timon U Vandamme
- Email: timon.vandamme@uza.be
- Phone: 03821
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How to take part
- Review the eligibility criteria above with your treating physician.
- Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
- Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.