Quality of life assessment for patients with neuroendocrine tumors
Patient-reported Outcomes in Neuroendocrine Neoplasms: a Prospective Quality of Life and Quality of Care Study Within NETwerk
This study is trying to see how living with neuroendocrine tumors affects patients' quality of life so that doctors can improve their care.
Quick facts
| Phase | Not applicable |
|---|---|
| Study type | Interventional |
| Enrollment | 1000 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | University Hospital, Antwerp Academic / other |
| Locations | 7 sites (Brasschaat, Antwerp and 6 other locations) |
| Trial ID | NCT05268783 on ClinicalTrials.gov |
What this trial studies
This study focuses on evaluating the quality of life for patients diagnosed with neuroendocrine tumors (NET) within a collaborative network of hospitals known as NETwerk. By utilizing standardized questionnaires, patients will provide feedback on their experiences throughout the diagnosis, treatment, and follow-up processes. The goal is to enhance the quality of care provided to these patients by identifying areas for improvement based on their reported outcomes. The participating hospitals include University Hospital Antwerp and several others in the Antwerp region.
Who should consider this trial
Good fit: Ideal candidates for this study are adults aged 18 and older who have been diagnosed with or are suspected to have a neuroendocrine tumor.
Not a fit: Patients without an email address will not be able to participate in this study.
Why it matters
Potential benefit: If successful, this study could lead to improved care strategies and better quality of life for patients with neuroendocrine tumors.
How similar studies have performed: Other studies focusing on patient-reported outcomes in cancer care have shown success in improving treatment approaches and patient satisfaction.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: * NEN patient * 18 years or older * Patient should appear in Oncobase Exclusion Criteria: * Patients who do not have an email address
Where this trial is running
Brasschaat, Antwerp and 6 other locations
- AZ Klina — Brasschaat, Antwerp, Belgium (Recruiting)
- AZ Monica — Deurne, Antwerp, Belgium (Not_yet_recruiting)
- Antwerp University Hospital — Edegem, Antwerp, Belgium (Recruiting)
- AZ Rivierenland — Rumst, Antwerp, Belgium (Recruiting)
- Vitaz — Sint-Niklaas, East-Flanders, Belgium (Recruiting)
- Zna — Antwerp, Belgium (Recruiting)
- Gza — Antwerp, Belgium (Recruiting)
Study contacts
- Study coordinator: Timon U Vandamme
- Email: timon.vandamme@uza.be
- Phone: 03821
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.