Clinical trial Recruiting at 6 sites Interventional Ages 18 and up

Quality of life assessment for patients with neuroendocrine tumors

Official title: Patient-reported Outcomes in Neuroendocrine Neoplasms: a Prospective Quality of Life and Quality of Care Study Within NETwerk

Run by University Hospital, Antwerp · NCT05268783 · Data updated 2026-11-12

This study is trying to see how living with neuroendocrine tumors affects patients' quality of life so that doctors can improve their care.

More Quality of Life (QOL) trials

Quick facts

Study typeInterventional
Ages18 Years and up
SexAll
Enrollment1000 (estimated)
SponsorUniversity Hospital, Antwerp
Academic / other
Locations7 sites (Brasschaat, Antwerp and 6 other locations)
StatusRecruiting
StartedNovember 5, 2018
Main results expectedDecember 31, 2029
Study endsDecember 31, 2029
Registry record updatedMarch 24, 2022
Trial IDNCT05268783 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates for this study are adults aged 18 and older who have been diagnosed with or are suspected to have a neuroendocrine tumor.

Probably not a fit

Patients without an email address will not be able to participate in this study.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This study focuses on evaluating the quality of life for patients diagnosed with neuroendocrine tumors (NET) within a collaborative network of hospitals known as NETwerk. By utilizing standardized questionnaires, patients will provide feedback on their experiences throughout the diagnosis, treatment, and follow-up processes. The goal is to enhance the quality of care provided to these patients by identifying areas for improvement based on their reported outcomes. The participating hospitals include University Hospital Antwerp and several others in the Antwerp region.

Why it matters

Potential benefit: If successful, this study could lead to improved care strategies and better quality of life for patients with neuroendocrine tumors.

How similar studies have gone: Other studies focusing on patient-reported outcomes in cancer care have shown success in improving treatment approaches and patient satisfaction.

Who can join: the full rules

Show full inclusion / exclusion criteria
Inclusion Criteria:

* NEN patient
* 18 years or older
* Patient should appear in Oncobase

Exclusion Criteria:

* Patients who do not have an email address

Where it's running

  • AZ Klina
    Brasschaat, Antwerp, Belgium
    Recruiting
  • Antwerp University Hospital
    Edegem, Antwerp, Belgium
    Recruiting
  • AZ Rivierenland
    Rumst, Antwerp, Belgium
    Recruiting
  • Vitaz
    Sint-Niklaas, East-Flanders, Belgium
    Recruiting
  • Zna
    Antwerp, Belgium
    Recruiting
  • Gza
    Antwerp, Belgium
    Recruiting
Show 1 more location
  • AZ Monica
    Deurne, Antwerp, Belgium
    Not yet recruiting

Study contacts

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.