Psychological support for adults with Marfan syndrome

Is this trial a fit for you?

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This observational study aims to identify the factors that lead adult patients with Marfan syndrome to seek psychological support. It will explore how the clinical manifestations of Marfan syndrome affect psychosocial aspects, self-esteem, and coping mechanisms. Participants will undergo psychological interviews and complete various self-report questionnaires to assess their mental health and quality of life. The study focuses on understanding the internal variables that drive the need for psychological support among these patients.

Why it matters

Who can join: the full rules

Inclusion Criteria:

* Subjects affected by Marfan syndrome;
* Subjects currently in follow-up at Cardiovascular Genetic Centre, IRCCS Policlinico San Donato;
* Signed informed consent.

Exclusion Criteria:

* Subjects with cognitive deficits

Where it's running

• IRCCS Policlinico San Donato
  San Donato Milanese, Lombardy, Italy Recruiting

Study contacts

• Principal investigator: Alessandro Pini, MD — Cardiovascular-Gentic Centre, IRCCS Policlinico San Donato
• Study coordinator: Alessandro Pini, MD
• Email: alessandro.pini@grupposandonato.it
• Phone: +390252774705

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How to take part

1. Review the eligibility criteria above with your treating physician.
2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.