Program for better living with non-memory-led dementia
Better Living With Non-memory-led Dementia: a Randomised Controlled Trial of a Web-based Caregiver Educational Programme
NA · University College, London · NCT06241287
This study tests a support program for caregivers of people with non-memory-led dementias to see if it helps them manage their caregiving challenges better.
Quick facts
| Phase | NA |
|---|---|
| Study type | Interventional |
| Enrollment | 238 (estimated) |
| Ages | 18 Years and up |
| Sex | All |
| Sponsor | University College, London (other) |
| Locations | 1 site (London) |
| Trial ID | NCT06241287 on ClinicalTrials.gov |
What this trial studies
This program aims to support unpaid caregivers of individuals with non-memory-led dementias, such as primary progressive aphasia (PPA), posterior cortical atrophy (PCA), or behavioral variant frontotemporal dementia (bvFTD). It addresses the unique challenges faced by caregivers of younger individuals with dementia, who often encounter difficulties related to employment and family responsibilities. The intervention includes educational resources and skill training tailored to the needs of these caregivers, enhancing their ability to provide care and manage their own well-being. Participants will be compared to a waiting list group to assess the program's effectiveness.
Who should consider this trial
Good fit: Ideal candidates are unpaid caregivers of adults with non-memory-led dementia who are not in full-time care facilities.
Not a fit: Patients who are in full-time care facilities or those with severe dementia affecting daily living activities may not benefit from this program.
Why it matters
Potential benefit: If successful, this program could significantly improve the quality of life for caregivers and the individuals they support by providing essential resources and training.
How similar studies have performed: While there is limited data on similar programs specifically for non-memory-led dementias, educational interventions for caregivers in dementia care have shown promise in improving caregiver outcomes.
Eligibility criteria
Show full inclusion / exclusion criteria
Inclusion Criteria: 1. Adults (18+) who self-identify as an unpaid carer (partners, children, friends, etc.) of someone with PPA, PCA or bvFTD who is not living in a full-time care facility. 2. The care recipient must have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention). 3. Able to give informed consent. 4. Good comprehension of written English. 5. Access to the internet. Exclusion Criteria: 1. Carers of people living with dementia in full-time care facility. 2. Carers of people with severe dementia in terms of large impact on activities of daily living. 3. Carers of individuals with any form of dementia other than PPA, PCA, or bvFTD. -
Where this trial is running
London
- University College London — London, United Kingdom (RECRUITING)
How to participate
- Review the eligibility criteria above with your treating physician.
- Visit the official trial page on ClinicalTrials.gov for the most current contact information and recruitment status.
- Contact the listed study coordinator or principal investigator to request pre-screening. Pre-screening is free and never obligates you to enroll.
Conditions: Dementia