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Clinical trial Recruiting at 1 site Interventional Ages 18 and up

Program for better living with non-memory-led dementia

Official title: Better Living With Non-memory-led Dementia: a Randomised Controlled Trial of a Web-based Caregiver Educational Programme

Run by University College, London · NCT06241287 · Data updated 2026-11-12

This study tests a support program for caregivers of people with non-memory-led dementias to see if it helps them manage their caregiving challenges better.

Quick facts

Study typeInterventional
Ages18 Years and up
SexAll
Enrollment238 (estimated)
SponsorUniversity College, London
Academic / other
Locations1 site (London)
StatusRecruiting
StartedJanuary 29, 2024
Main results expectedMarch 31, 2026
Study endsSeptember 30, 2027
Registry record updatedAugust 13, 2025
Trial IDNCT06241287 on ClinicalTrials.gov

Is this trial a fit for you?

Likely a good fit

Ideal candidates are unpaid caregivers of adults with non-memory-led dementia who are not in full-time care facilities.

Probably not a fit

Patients who are in full-time care facilities or those with severe dementia affecting daily living activities may not benefit from this program.

A plain-English reading of the study's rules. Only the study team can confirm whether you qualify.

What this trial studies

This program aims to support unpaid caregivers of individuals with non-memory-led dementias, such as primary progressive aphasia (PPA), posterior cortical atrophy (PCA), or behavioral variant frontotemporal dementia (bvFTD). It addresses the unique challenges faced by caregivers of younger individuals with dementia, who often encounter difficulties related to employment and family responsibilities. The intervention includes educational resources and skill training tailored to the needs of these caregivers, enhancing their ability to provide care and manage their own well-being. Participants will be compared to a waiting list group to assess the program's effectiveness.

Why it matters

Potential benefit: If successful, this program could significantly improve the quality of life for caregivers and the individuals they support by providing essential resources and training.

How similar studies have gone: While there is limited data on similar programs specifically for non-memory-led dementias, educational interventions for caregivers in dementia care have shown promise in improving caregiver outcomes.

Who can join: the full rules

Show full inclusion / exclusion criteria 
Inclusion Criteria:

1. Adults (18+) who self-identify as an unpaid carer (partners, children, friends, etc.) of someone with PPA, PCA or bvFTD who is not living in a full-time care facility.
2. The care recipient must have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention).
3. Able to give informed consent.
4. Good comprehension of written English.
5. Access to the internet.

Exclusion Criteria:

1. Carers of people living with dementia in full-time care facility.
2. Carers of people with severe dementia in terms of large impact on activities of daily living.
3. Carers of individuals with any form of dementia other than PPA, PCA, or bvFTD. -

Where it's running

  • University College London
    London, United Kingdom     Recruiting

Similar studies

Other studies for the same condition or treatment. Recruiting studies are listed first.

How to take part

  1. Review the eligibility criteria above with your treating physician.
  2. Check the official listing on ClinicalTrials.gov for the latest contact details and recruitment status.
  3. Contact the study coordinator or principal investigator to ask for pre-screening. Pre-screening is free and never obligates you to enroll.
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Last reviewed 2026-11-14 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.